hi all, just an update, after pet scan showed one lymph node showing its back, am now back on another journey, with surgery scheduled for this thursday. had my pre op assessment today, soon as i walked in there, just started crying, its trigering everything off again. cant believe i am on yet another journey.
But glad i have another chance to get this little sod out of my body again. They was all ready to go with radiotherapy but i had so much for my breast cancer and oesophagus thats not feasable, so plan is to remove the node and biopsy afterwards.
Sending love and hugs to all of the other warriors out there. Although currently i deffo dont feel like one of them.
Thank you for reading, just know how awful it was at home with the last two, dont think this time its going to be any different.
Luv Jules
Oh Jules ! So sorry to hear your starting on another journey!! Good news that they feel they can remove it though will be thinking of you on Thursday sending big hugs keep chin up xxxx
thank you CB, and other family members, trying to keep a grip, feel so angry that it feels like people are treating this like i am having a tooth out, wasting precious time arguing, crying, wanting to be left alone, then desperate not to be on my own. I remember so clearly the silent journeys to the appointments, even the morning of the surgeries, so alone, mixture of flight, freeze and fight, had a 3 minute call to say hes going to take it out, forgot to ask about op time, drains, recovery time, risks, so perhaps thats why i am even more scared this time.
Was such a lonely awful time, i just cant face that again but i know i have to, ive got another chance for some more time, just have to make sure when i get out the other side i now chose how to spend it, make my own plans.
thank you all for reading, god help the poor tesco delivery man that is running 45 minutes late when he arrives, of all the days for it to go boobs up, whilst tomorrow is packing a bag, getting my drugs ready, and numb mode
jules xx
thank you all, youve always stepped up, feel so ashamed for being on a debbie downer, got some personal admin sorted, teams meeting with work tomorrow, great, just want to get it out of the way, our will nearly ready to be re written, some of the people on there, jesus, havent seen or heard of them for years, 90 year old auntie self tax assessment, thankfully we have got a call to sort that stress bubble out, and then maybe before thursday we can just bring things down a bit at home in a good way, just trying to find some nightwear and slippers, hoping to god i dont need those.
Think there has been so much anxiety, and anger with the whole thing coming back, the delays, the waiting, you think we would be good at this by now, seems not. One silver lining, we didnt book Dubai a month ago when we thought all of this cancer stuff was finally coming to an end. so hey.
Chinese takeaway tonight, stuff it, not gluten free, but whatever
Can feel the shoulders lifting a bit, just by sorting some things i have control of., and your kind words, Keep doing what ever you need to do
and thank you all, they say you cant chose your family but with this cancer, luckily the family has chosen and helped me.
Luv ya,
jules
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