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Hi, I am a nurse and have been for nearly 30 years. My husband had what I thought was a fainting episode which was then wrongly diagnosed as a stroke and after 3 months of investigating they did a biopsy and he got the grade 4 glioblastoma diagnosis....
My husband was diagnosed with an inoperable grade 4 glioblastoma in Nov 24. He he’s had the standard treatment of 6 weeks radiotherapy/chemo, followed by 9 rounds of TMZ and latterly with 2 rounds of Lomustine. The tumour is methylated and initially responded...
It’s been nearly a year since my first post and I’m so grateful for the year we’ve had together. My hubby (59 now) was diagnosed after having a seizure in April 25. His tumour was diffuse and inoperable however, they did remove a hypertensive nodule during...
Hi my 78 yr old stepdad was diagnosed 5 weeks ago, he was in hospital for 3 weeks, and was so angry and agitated as he just wanted home, we took him home but his aggressive behaviour was so difficult to manage and he was placed in a hospice, they have...
hi everyone I guess I’m looking for some reassurance as the doctor has given us no hope. Mum has been complaining of whole body pains including her hips, feet and lower back. She’s also been having mild headaches but we all noticed a change of personality...
My husband has his first ( known) seizure 4 days ago,this is just over a week of being discharged from hospital which lasted several minutes. Since then I've noticed another decline cognitively and mobility.He seems to be dragging his legs a little...
Hi All, I have been a GBM patient for three years and nine months, and I have created a couple of documents on things that I wish I had known or asked back when this all began. Firstly a glossary. Secondly a list of questions to ask your medical...
Its now been 4 wks since my husband's return from hospital care and since his symptoms have changed quite a bit, particularly since his seizure. Last night I was up 5 times with him, he was going to the toilet or just standing in the bathroom...one...
My husband (68) was diagnosed 5 weeks ago with no warning. Surgery not considered. Following biopsy he lost mobility and has never left hospital. He had 2 weeks radiotherapy but we are now done and no more treatment. He is too be moved to a hospice. He...
My wife came home from the hospice on February 24th so it will be eight weeks on Tuesday that I have caring for her at home and now we are coming to the hard yards. For about a week now she has been all but bed-boun̈d, only getting out to use the commode...
