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My husband has been in the hospice for over 3 weeks now and his meds have been tweaked and the seizures are now under control. He seems to have dementia symptoms which I believe can be normal with this type of tumour He was diagnosed end of November after...
Hi all It's been a while since I was on here, apologies and I am so so sad to see all the new diagnosises. My mum has GBM, its a year since diagnosis and 6 weeks radiotherapy with chemo didnt help. She is on alternative chemo tablets on a reduced dose...
Hi .im new and still abit unsure what im doing .my husband was diagnosed at the end of september and had the op 2 weeks later .i find it hard knowing wot is the new normal and wot i should be worried about .He handled the 6 week chemo and radiotherapy...
Hello everyone. My dad completed two rounds of PCV and didn’t even have any side effects but he has decided that he wants to stop treatment now. He has been discharged from Oncology and will be transferred over to Palliative care in the community...
I would like to send out my sympathies to everyone who is effected by this terrible disease. This is my first post and feeling desperate for any support that can be provided. My husband was diagnosed last September which was a shock to us all as he had...
My husband had a stroke during a resection for a Glioblastoma .He has a left side paralysis and needs hoisting ..I am finding it very difficult to cope with .Has anyone else got any experience of this happening and did they get any mobility back ?
My husband has now been in a hospice care for 2wks after a rapid decline and a rushed visit to AE. He is on 16 MG of Dex and although cognitively severely affected the vomiting and mobility issues have ceased. The care team will drop his dex to 10...
Hello everyone it is with both grief and relief that I can say S has passed. My gregarious opinionated but impossible to hate brother died on Monday morning surrounded by his loving wife, daughter and sister in law. He had survived way longer than expected...
I am just just entering the fifth week of caring for my beloved wife at home and I think we are nearing the end. She is sleeping more and more, 22 hours yesterday, and her coherence is getting much worse. I feel so lonely. The last few weeks have been...
Hello again From the notes/letter I’ve been sent, investigation into my tumour took a while longer, due to me having Nf-1 & Lynch Syndrome, but it looks like it’s PXA rather than GBM thanks Chris
