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Hello My husband was diagnosed in January after he suddenly became confused, he had surgery 2 weeks later and completed 30 days of radiotherapy. His chemotherapy has been paused due to bilateral PEs we are hoping it will be recommenced soon. His confusion...
Hi, my fit and healthy 81 year old mum, went into hospital in March suffering with brain fog and balance issues. We did not think it was going to be a big issue but then was death the devastating news it’s a glioblastoma. After referrals were made it...
My husband has been very gradually declining since March. One year since diagnosis. He had already completed 6 rounds of TMZ and then 2 rounds of PCV. His scans after both had shown progression. Oncology were happy for him to try radiotherapy which he...
Has anyone else found the limbo between knowing if presenting symptoms are a treatment side effect or a sign of disease progression? Loved one was told to reduce steroids but unfortunately we've had to go back to daily steroids as their presenting symptoms...
Living in Spain Husband having treatment for a glioblastoma grade 4 tumor. He was diagnosed in January.Tumor removed in February this year and has finished first part of treatment with radiotherapy and oral chemo .Now having a 'break' before he starts...
Hello everyone, My name is Kim and I’m 22. My stepdad, who has brought me up since I was 3 years old, was diagnosed with glioblastoma in April last year. He had a successful surgery, radiotherapy, and chemotherapy, which he finished this January. His...
My husband has a corpus callosum tumour and on a palliative pathway,he has a significant mobility decline over the last few days meaning that it often takes myself and my son to take him to the toilet or upstairs to bed. I'm not keen on having a hospital...
Hi everyone, just after some reassurance/advice. My dad was diagnosed with a right frontal lobe gbm in July ‘25. He has had the SOC and completed the 6 weeks’ radiotherapy 10 days ago. He has been really well throughout all of his treatment and the...
My hubby died from GBM4 early March this year. He battled this cruel disease for 16 months. I thought I was doing well. I felt my 3 dogs were settled (they howled when left but we got them to 1 hr) and started a slow phrased return at work. Had to have...
Hello, I'm just reaching out to this community as I know there's a lot of us sadly, living with and caring for our partners, and as great as my friends are being, it feels like a good time to reach out to anyone in a similar situation. My husband...
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