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Hi, I took my husband to A&E in October 22 suspected a mini stroke. A CT scan showed a mass in the right brain. 1 week and 1 day later he had a cranioctomy at Queens Square. Unfortunately, post op he had a bleed on the brain which left him lame on his...
My mother-in-law was recently diagnosed with Stage 4 Glioblastoma and the cells tested were said to be methylated (supposedly respond better to chemo). Her diagnosis was discovered when she had a seizure which revealed a brain lesion. The lesion was ultimately...
Hi, Another patient in clinic mentioned about using sap extracted from a particular cactus to help treat GBM 4. Has anyone come across this and knows which Cactus and how to get the sap out etc? TIA
I never know with this dreadful disease whether it's just my mum having a bad day or things are getting worse!! My mum is now is a care home due to "Tommy Tumour", being at home was no longer safer and we just couldn't manage. We are now at the stage...
Hi everyone! We’re so happy, they removed 95% of my husbands GMB, from 5 different locations in the brain. However it’s the wild type so chemo and radiation need to start asap. I was wondering if you could share your experience on temolozomide? For the...
Hello My wife (53) was diagnosed with GBM grade 4 in November - she’d been getting weaker and terrible headaches and then her left side gave way. Turned out to be 4cm tumour in right temporal lobe and her problems were from huge edema. She luckily had...
Hi all im new on here, my husband was diagnosed with gbm 4 10 years ago now so had done so well!! Recently, last 6 months, he has started having small seizures that last seconds. Then last Thursday night he had quite a big one where he shook violently...
Hello. My mum has just been diagnosed with GBM. She had been unwell for some time but had previously been told she had Delerium, then months later a diagnosis of Encephelitis but now this. We are devastated. Anger, sadness, helplessness. Feel like...
This sounds a silly question, but my muns tumour has practically doubled since having 3 months off chemo. We are now trying another chemo tablet. My question is , am I right in thinking she can pass away at anytime or when the whole brain area has...
In mid October 2022 my husband was playing golf when his co-ordination went haywire. His friends brought him home and I thought he had had a TIA. NHS111 organised a consultation with an out of hours GP who immediately sent us to the stroke unit of the...
