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Hello, we found out in December that my mum has a brain tumor. She had an operation mid January and 3 weeks later we found out it's glioblastoma wild type, grade 4. While trying to figure out treatment options she had last couple of days severe headache...
HI everyone Today we had our first visit from the palliative care nurse and taken delivery of our "just in case" box. I collected the drugs to go in it from the pharmacy late afternoon. It's now lurking on top of the fridge....just in case. The news...
Hi everyone my husband was diagnosed last august Glioblastoma G4. We have had all the emotional distress, the what where’s why’s etc, He had 3 weeks radiotherapy and oral trial drugs.in November and I must say he felt well directly after the treatment...
Hi, I am desperate for some information. My sister who is 53 was diagnosed with GBM4 3rd jan 22, by the 7th they had removed the bulk of the tumour and said that there will always be some cancer cells left. She has been worse since her surgery. I heard...
Hi all, I am new to this group, after advise my friend was diagnosed with gliblastoma (3 tumours) at the time of the biopsy the surgeon told her husband it’s the worst brain cancer and is incurable and where they are inoperable. The neurologist said...
Hello all. I am wondering how people cope after the recognised treatment has finished? My husband has had his surgery, radiotherapy/chemo and 6 cycles of temozolomide and his tumour has shrunk. We are now having a gap of three months until the next scan...
As mentioned b4 my mum has grade 4 of this and she has memory problems and struggles to process anything. Today she got upset and said to me am I going to be ok. I held back the tears and said yes. Afterwards I was upset I haven't the heart to tell...
Hi everyone, I've just found this forum and how many stories are so similar to my mums, she is 56 and very healthy and then one week before Christmas she starting getting confused with terrible headaches, on Christmas day we took her to the hospital where...
Hi all, I’ve been on this group for a while know and have been reading people’s posts about GBM4 journeys. as you know my dad had GBM4 and he fought for 19 months. He lost his battle 3 weeks ago to this bastard. He was 49. This has been the most stressful...
My mum has had gilbo stage 4 for nearly a year now..recently she is starting to get more confused and can't remember things . Majority of the time she has no understanding of what's wrong with her, abd has no concept of the degree of the tumour. Is...
