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Hi, this is my first time writing although I have been taking heart/breaking my heart reading about your experiences for some time; this is a horrible, horrible disease. My husband was diagnosed just before Christmas 2021, craniotomy in January 2022...
My mum has glioblastoma stage 4,her vision is greatly affected and is getting worse. Anyone else experiencing this
Hi all, as some of you may know my dad has a GBM4. Diagnosed last May 2021. Had a craniotomy and had total rremoval of said tumour. Went into remission in August but sadly we went away and noticed his personality changed a bit. He had MRI etc and found...
Hi all, My mum was diagnosed with a GBM4 around 3 years ago. She was generally in good health throughout her treatment, and managed to see my graduation and wedding. However since November 2022 she has had a health decline. Limited mobility, loss of...
Hi, my lovely dad was diagnosed with a glioblastoma back in September 2022, the weeks before he was acting very confused and out of r character, as a family we managed to persuade him to go to A&E, where we was told of his diagnosis, as you can imagine...
How do you start talking to 3.5 year old boy about the fact I'm not going to be around long? Do you use the mummy is going to "live with the stars thing" which is easier but then i don't want him to think I've left him to go live somewhere else. Also...
Hello, this is my first post on here- a place I’m sure everyone would rather not be. My sister is 35 years old and was diagnosed in October 2022, she has had her surgery and about to finish her six week course of radio and temo. My reason for posting...
I know that this is a completely pointless and possibly self destructive question to ask but I can’t help having these thoughts in my head. My wife passed on 3rd December from GBM4 after a really brutal few months from when she was first diagnosed with...
Hello, I’m on this group already as my Dad has been battling his GBM since June 2021. My friend’s sister sadly has one too and is at the end of her 6 week radiotherapy before starting 6 months on TMZ. She is having a lot of pain in her arm and has young...
Hi all! thanks for all your wonderful answers and the support. They have really helped me. It’s scary to be on this journey but knowing I’m not alone is good. my husband finally has his awake craniotomy on Friday. I'm of course nervous! I’d like to see...
