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Hi Everyone, Been a while since I posted. As lots of you know my mum was diagnosed with a GBM4 unnethylated tumour in August 2022. The prognosis without treatment was poor (less than 3 months) due to size and location the tumour couldn't be operated...
Hello everyone, My mom, 75 years old, was recently diagnosed with GBM in the left parietal lobe. She had craniotomy on 9 March so just over 3 weeks ago and she is in a bad way. Her speech / language part of the brain has been affected so communication...
My daughter Sasha is 41 and just been diagnosed. After about 4 years carefully watching a glioma with regular MRI scans, her specialist thinks that surgery in June is now the best option. We would love to hear from anyone who can give help or advice...
Hi everyone. My wife (53) was diagnosed GBM in November 22 and had full resection. Since then she’s done radio/chemo and is now on TMZ. Other than fatigue she’s tolerating the treatment well. My question is about the important conversations. We were...
Hi my husband was diagnosed just six weeks ago. He has been told there is nothing they can do. We are at home now and I am caring for him until I need help from hospice outreach. We are both still in shock.
I’m here because my daughter has found from MRI scans that she has glioma and requires surgery in June! Nothing I’ve read gives me much reassurance but I’m no expert, yet! She’s in her early 40s and otherwise fit and healthy. Is there anyone here who...
I am sure I am not the only person on here, that has struggled with today. knowing that is likely to be the last with my mum. it's so incredibly hard. Mum just seems to be getting worse, we have palliative care Team coming to do an assessment in the...
Hi, am new here searching for some advice from those who have sadly walked this path before. In summary, my amazing mum was diagnosed with GBM aged 63, inoperable & unmethylated, Aug 22. 3 weeks of radio and one cycle of chemo. Then treatment was stopped...
Mum seems different... so we are nearly 12 months into this journey (and god I hate that word!!) op done, radio and chemo all but last round done. Decision no more treatment made as mum is now in a care home and unable to look after herself. Last...
Hi. My mum was diagnosed a year ago and was given a prognosis of 12 months approximately. My emotions have been like a roller-coaster over the last year, but since knowing its a year now I feel rock bottom. It's like having a ticking time bomb....
