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New to the group today. My husband was diagnosed with glioblastoma last June 2 weeks before we were due to fly out to get married abroad. He had surgery on the day we were due to fly followed by radiotherapy and chemotherapy. (I’m happy to say we got...
This is so hard. Watching my husband physically deteriorate so fast. His mobility is almost non-existent now. We are using pads. We can still do stairs as he can balance himself with the rails but walking is so difficult. I know that soon the stairs...
https://www.thebraintumourcharity.org/media-centre/news/research-news/aristocrat-a-pioneering-trial-using-a-cannabinoid-based-drug-to-treat-brain-tumours/ If anyone is recently diagnosed, this trial would be very interesting. When my husband was...
Last Friday after 13 months of having this cruel disease,my mum gained her angel wings. She fought so hard and we made lovely memories in the last year, unfortunately the last month she just suddenly deteriorated and the hardest part was she went totally...
Hi, I am new here. My husband was diagnosed in September 2021 and has had surgery chemo and radiotherapy combined for 6 weeks and he managed 11 months of chemo. he finished in November 2022 and since then I feel he has gradually deteriorated but the scans...
Hello. I am supporting my husband who received his diagnosis of GBM4 two weeks ago during our last CNS appointment of Radiotherapy. Our cancer journey began in early January when my husband ended up in AandE with a suspected stroke which turned out to...
Hi Everyone, I'm not really sure what I hope to gain from this post. Mum was diagnosed in August 2022 and had one round of radio and chemo which finished in Dec. During this she was extremely poorly and this has lasting effects. We had a "this is it...
Hi guys, Think I’m just looking for somewhere to air my situation. Dad was diagnosed November 22 and it’s been a constant struggle with the care he’s received. Can’t be bothered going into it all but the entire things been a farce. He’s fallen through...
Sadly my husband passed away 3 weeks ago. He was diagnosed last September with Glioblastoma… he had No symptoms up until his last breath. He was told on the 30/3 that the tumour had grown, we were devastated they had never seen someone walking fit and...
Hi everyone, my brother was diagnosed with 4 grade GBM, wild type last April. He had tumor removed, followed by 6 weeks of radio and chemotherapy (TMZ). Done 1 cycle of Tmz when the symptoms got very bad. He looked like person,with deep dementia, which...
