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My wife of 47 years died last night, two years and two weeks after the first seizure that led to diagnosis. The end was hard, her breathing had been rattling since yesterday morning and in the afternoon her mouth began to fill up with foam. It was most...
Hi folks I commented recently on a reply that not much had been done by way of research in GBM. Someone must have been listening because this article has been published in The Telegraph Deadliest brain cancer could be treated with immunotherapy...
Hi all, It's been a while since I've updated on our situation and I know how useful I find reading other's experiences (good and bad) so here goes: My wife has just finished her 6 months of temozolomide. It all went fairly smoothly. The last round...
I just wanted to say a big thank you. This forum has been such a source of support since my husband was diagnosed with glioblastoma. He was diagnosed in March, and when I wrote my first post, so many of you reached out with kindness and compassion. I...
Hello, my husband had his first seizure Monday evening I’ve never been so scared thought I was going to lose him, sorry if that sounds dramatic. He’s been started on anti-epileptic medication not sure if this is causing him to sleep most of the day. His...
Hi, I am new to this group. My daughter, age 48, has recently had the glioblastoma diagnosis. She has had surgery with all visible tumour removed. She starts her Chemo/Radiation next week. I am hoping to hear any experience people might have had with...
My hubby is now bed-bound as his mobility has declined over the last few weeks. His scan after radiotherapy in April has shown more progression so we have been passed over to the Palliative Care Team and District Nurses. They did a fast tracked CHC for...
My wonderful dad died yesterday morning at 06:10 with my mum, me and my brother with him. He was transferred to our local hospice exactly 2 weeks prior to this, and the care provided there was second to none. We really did feel that dad was safe, and...
My husband who is just 60 years old was diagnosed on Christmas Day with a Glioblastoma .He had a near complete resection in January but during surgery he hada stroke and has a Left Hemiparesis so is now needing to be hoisted in and out of bed and has...
We are nearly 4 years since diagnosis and it has been tough. My husband has had left side weakness since surgery which worsened with the removal of steroids. The last 12 months have been particularly hard as his personality can change and he is not the...
