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Hello, In May 2026 my mother was admitted to kings college London with a right frontal space-occupying lesion with partial movement of the right basel ganglia and partially crossing the midline, of approximately 27 x 26 x 23 with moderate mass effect...
Hello everybody, My mum who is aged 61 was officially told she has grade 4 glioblastoma. It all started with her vision degrading quickly, she went to the opticians who referred her to A&E they suspected she had a cataract in her eye. After running...
Hiya This is my first post and hoping for some advice, experiences or just anything to stop me from feeling like I am going mad my 68 year old father was told on Tuesday he has high grade glioma very likely glioblastoma. This all come to light after...
Tomorrow, Friday 11th September marks 3 months since my beloved wife passed away with glioblastoma. Slowly, I am trying to keep the promise I made to her to "put my life back together" but I find it a great effort of will. I am riddled with guilt - guilt...
HI All, I've just returned from Germany where I received this treatment. Happy to answer any questions.
Hello everyone. I’m 42 and my mum (68) has recently been diagnosed with glioblastoma. Mum was fit, healthy and active - no symptoms or concerns - until she had a seizure whilst gardening. Two weeks later, she had unsuccessful brain surgery. Surgeons were...
Hi this is my first post. My husband was diagnosed with grade4 glioblastoma in may. He has had an operation to remove as much as possible of the tumour and had radiotherapy and chemo. However he was due to have 2nd round of chemo and has said he no longer...
My partner keeps talking about all the things that he’s going to do next year. He was diagnosed with glioblastoma in May this year.He’s had the tumour debulked and has gone through a course of radiotherapy and chemotherapy. He’s going to have another...
My wonderful husband lost his fight last Friday evening. We were at home with all our adult family when he passed peacefully. I have cried but still feel like it’s surreal. I’m struggling to be able to remember what he was like before. The last 14 months...
Hi everyone, this is difficult, I didn't find this group until a few days ago. My wife of 37 years was diagnosed in February 2024, after her first symptoms in December 2023 and operation in January 2024. Another operation followed in April 2025, was so...
