Hi all,
It's been a while since I've updated on our situation and I know how useful I find reading other's experiences (good and bad) so here goes:
My wife has just finished her 6 months of temozolomide. It all went fairly smoothly. The last round had to be delayed 2 weeks as her platelets got a bit low (down to 87) but lots of leafy greens and the break got them back up to 101.
We have the dexamethasone down to 500mcg every other day. She still gets headaches if we withdraw all together but this is about as low a dose as possible so we're not worried about this being long term.
We met the oncologist on Friday to discuss next steps. The MRI is still showing no growth since last MRI but there is some enhancement that remains i.e. cancer cells. He's said we now go into a treatment break and have MRIs every 3-4 months and then if/when growth return we discuss second line chemo e.g. PCV.
So, this is as good as we could have hoped for last July when she was first diagnosed. It's still obviously a difficult situation as she has ongoing mobility and cognitive issues caused by the tumour but she's still hanging in there and fighting.
All the best to everyone,
Chris
Hi Chris
Glad to hear things are stable and the MRI was good news. Long may it continue. G remained stable for almost two years.
Sending you both a huge virtual hug and lots of positive energy. Stay strong.
love n hugs
Wee Me xx
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