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Hi am new so just to introduce myself
Hi, am new here, I have lots of things apparently :( Follicle Lymphoma its called and its Stage 4A, it has moved already to my Spleen, my stomach, my skin and my muscles...am on my own in the world, my 3 children do not want to do something with me, one...
I have had FL for over a year and since then, my best friend has changed. She told everyone she knows about my diagnosis and I feel it’s mostly to get attention (I’ve had strangers coming to me looking at me with puppy eyes and head on the side asking...
Hey all My hubby was recently diagnosed with NHFL. He's had surgery to have a lymph node removed from his neck which was successful and confirmed diagnosis. From this he has had PET scans CT scans, blood work etc etc. I'm sure you're all familiar...
Hi My husband has just been diagnosed with follicular lymphoma. The haematologist suspected it was an aggressive Large B cell as the lump came from nowhere and grew big quickly. 5x5 cm on collar bone. Hes still waiting for bone marrow test. But his...
Anyone have any experience with CT DNA monitoring for follicular lymphoma. I'm having it for a prior colon cancer resection, but was wondering if it could be used for FL monitoring too.
I was diagnosed with follicular lymphoma a little over a week ago. Strangely enough, the diagnosis came by accident. Following surgery for colon cancer, and 6 months of adjuvant chemo I had the usual CT scan. It noted an enlarged lymph node in my groin...
Hi everyone, I hope some of not most of you are doing well. Sending love to you all x I have been speaking to a lovely man know as Mike (The Highlander) on here about my recent diagnosis and the treatment they have said they are going to do but I...
This is my diagnosis and advice to have no treatment, but “watch and wait” I’m wondering how many people out there are in this “boat” and if you feel satisfied with “just doing nothing” I’m trying to work out what I can do to beat this naturally. Is there...
Hi all my husband was diagnosed with FL stage 4 last September. He has had 6 rounds of chemo O-chop and 2 rounds of immunotherapy so far. all seemed to be going well on his interim scan in November but his final end of treatment scan in March showed...
