Hey all
My hubby was recently diagnosed with NHFL. He's had surgery to have a lymph node removed from his neck which was successful and confirmed diagnosis.
From this he has had PET scans CT scans, blood work etc etc. I'm sure you're all familiar with how this goes.
We've been informed this morning that the cancer has spread to his bones and bowels. We are awaiting an appointment from the chemo team which we are expecting in the next few days.
But I feel like my life is crashing around me. This has all happened in the past month. I'm an emotional wreck but want to be able to support my husband as best I can. All I can think about is the worst.
More a rant than anything. Im just lost.
Hi Sarahh9110 and a warm welcome to this corner of the Community although I am sorry to see you joining us and to hear about your husband’s FL diagnosis.
I am Mike and I help out around our various Lymphoma groups…… the first thing I will say is take a big breath…… then another.
I don’t have Follicular Lymphoma but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of Cutaneous T-Cell NHL (a type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive Peripheral T-Cell NHL (a type of fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
From the outset FL is one of the most common types of slow growing Low-grade non-Hodgkin lymphoma and this means that there are plenty treatment options as and when required.
Lymphoma is such a different cancer from most other cancers, they are very treatable with very good results…… yes some treatments are challenging but all do-able…… even me with 2 very rare types of hard to treat T-Cell is best summed up in that thought that…… when I was first diagnosed over 25 years ago our daughters were 14 and 18…… but we went on to see our daughters graduate, get married, set up very successful businesses and provide us with 4 beautiful granddaughters….. I turned 69 in Nov and as a family we celebrated 9 years since my last treatment in Oct.
As you get ready for his next appointment you may find these links helpful….
Top tips for getting the best from your appointments
Questions to ask your medical team about Lymphoma
Happy answer questions or just chat ((hugs))
