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Hi I’ve completed 6 months of Rituximab and Bendamustine for Follicular Non Hodgkin Lymphoma. The scan at the end of the treatment shows there are still a couple of nodes near my stomach but the Consultant says she’s not worried about them? They are having...
After the visit to the haematology department they want to start me on R-CVP chemotherapy. I feel so calm and at peace with the decision it is strange. However I am trying to organised and more prepared. Can anyone recommend good links/books of what not...
Hi All, I just wanted to introduce myself. My name is Lee I’m 48 and I was diagnosed with follicular non Hodgkin lymphoma in April. It took 4 months to diagnose me after numerous trips to A&E because of pain in my stomach. the lymph nodes in my retroperitoneal...
I am so confused and have no trust in the hospital. Last year I was diagnosed with Follicular NH lymphoma in three lymph nodes in the stomach area. They said that it was slow growing and wanted to a a 'Watch and Watch' treatment. I was seen twice with...
Hello - I’ve just been given an “incidental diagnosis” of follicular lymphoma with a mixture of grade 2 and 3a disease. They say it’s low grade. I have my first appointment with my haematologist tomorrow and hoping for some words of comfort or advice...
Hi everyone. Just had to share that I have had my last two year maintenance infusion of Obinutuzumab after the initial 6 cycles of O-CVP . I read a lot of posts on here regarding our conditions, all so varied as they are with LYMPHOMA - but in joining...
Hi I have Follicular Non Hodgkin lymphoma and have just had my second chemo of six sessions, I had the most painful neuropathy this morning getting out of bed, it was in my side radiating into my lower back, honestly I have never experienced pain like...
Hi all was wondering if this has happened to anyone else..... my story started last August I'm a postman who thankfully delivers to his own house! Well I was about 4 doors away from my house when I had the urge to pee I thought " nice one so close to...
Hi there My uncle has recently received his diagnosis of FL3A, however, we've been advised it is an aggressive variant. I'm a little confused and am struggling to find accurate information on this type of FL as everything says 3A is slow growing but...
