Hi All,
I just wanted to introduce myself. My name is Lee I’m 48 and I was diagnosed with follicular non Hodgkin lymphoma in April. It took 4 months to diagnose me after numerous trips to A&E because of pain in my stomach. the lymph nodes in my retroperitoneal space were found to be swollen, the largest being 4.7X3.5.
I have had 6 out of 8 cycles of O-CVP and been relatively good with side effects from it. I have had 3 delays during treatment. The first was two weeks on cycle one, after the first cycle you then go back for target therapy however that was delayed because of low platelets. So after my platelets didn’t improve the DR decided to move straight in to cycle 2. I then had a delay on cycle 5 by 6 days again because of low platelets.
I was never told of my stage as never had a PET scan but from my symptoms I think it’s either 3/4B. When I first met my hematology DR he didn’t even state my stage I told him and he didn’t disagree. Although it’s not good to be told you have cancer I do take comfort in being told it’s treatable and I hope I get to live a long life even if it’s with cancer.
I also have a fantastic wife and family who are very supporting.
