Hi everyone. Just had to share that I have had my last two year maintenance infusion of Obinutuzumab after the initial 6 cycles of O-CVP .
I read a lot of posts on here regarding our conditions, all so varied as they are with LYMPHOMA - but in joining this group it helped me focus a lot of just getting through the initial treatment. Also one of the moderators on here Thehighlander AKA Mike gave me lots of good advice and pointed me to the Lymphoma Action Group which also has excellent information specified to Lymphoma. (Christina) on the FB Lymphoma site.!
I am so lucky to have achieved Full Remission, and now I will focus on that. I did think at the start, "is this ever going to get better" - but take it from me and others it does! I can honestly say I am now fully "recovered" to be able to do the lifestyle things I did before having treatment. I am 71 now, and hoping that I will be lucky enough to enjoy a lengthy remission.
I know I will check in periodically to these sites, as you gain so much valuable knowledge of various treatments, and their effects good or bad from all walks of life, and the effects before and after etc., plus having the nurse led community as well - it's all a godsend!
I did find it difficult at first to chat to anyone else having treatment with the above drug and O-CVP as two years ago it was more rituximab in general. If I can help in anyway with others on the drug, willing to be asked!
Wishing you all well for 2025
Hi again Christina Glann and sorry for not getting back to you sooner but the Community gremlins have been having a party 
Great to hear that you are now at the end of your 2 year maintenance…… now it’s time to set the sails and navigate into that new future.
I am so pleased to hear the you have found this community a great help…… but also the very large community on the various Support Platforms that the main UK Lymphoma charity Lymphoma Action provide.
Talking can indeed help….. when you receive a Lymphoma diagnosis it is easy to go into a mind frame that convinces you that you are the only person in the world navigating this journey…….. how far is that from the truth.
Wonderful that you want to stick around and help others as they embark on their Lymphoma journey.
Looking forward to you coming in and using your first hand experience to support others ((hugs))
