Wednesday, August 17 - My doctor reviewed my PET scan results and went over them with us. I am 100% in remission!! Am I supposed to ring a bell or something? Summer has been a lonnnnng haul of strange problems. Some were related to my FL, some...
Hi I am in cycle 2 of chemo and the last few days I have loss complete taste in my mouth, can’t have tea or coffee at all and got an awful sickly feeling at times. I am on stronger anti sickness tablets so hopefully that will ease the sickness. it’s...
Hi all im on watch & wait, follicular lymphoma grade 1/2 i want a dental implant, i have had one already that went well without issue! And although hadnt been diagnosed i would have had the lymphoma at that time. Anyone any advice thoughts?? The bad...
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
I am receiving maintenance therapy for Follicular Lymphoma after completing a course of chemotherapy last year. I would love to hear from others how they are experiencing going back to work, how supportive employers have been and how they cope with the...
Hi all, Going on this Thursday for a PET CT scan to find out if my Lymphoma has changed.. Have to say I'm feeling a little scared..not knowing what the outcome is or how I will feel if I have to go through radiology again...either way I must feel...
Yes, chemo drugs can cause neuropathy. I have the added bonus of trying to treat bone lesions (hip/femur). So I have nerves that were already damaged and painful. Chemo treatments exacerbate that to the nth degree. And I’m going backwards now. (FYI -...
Hi...I have folicular lymphoma...I'm at the point that I am waiting to find out if the treatment I had has worked or I have to go back for more.. I know that the cancer could come back somewhere else in the future which is why I am thinking about elective...
Any suggestions to help with extreme fatigue? My daughter is on Watch&Wait at present, but is really struggling to cope. She is sleeping a lot but is still exhausted all the time! Thanks
