REMISSION!

Good news SeVen and let’s look for life to get back on a more even keel from now on.

Worthy of a celebration I would say

Great News I was lucky I have great oncologist , lousy Dr surgery but I just phoned my oncologist Secretary when my dr Keept saying I had cyst 5 by this point on my neck , he got me CT Pet scan I had 6 months of treatment & finished last 30 August 2022 I’m exsausted but I have a future to plan , life I hope will be fun I love going out on bus to local town I hope I get the permission soon see him 12 October that’s next important date in my life but so far all gone well , I travel 9 miles for treatment I’m very lucky have fantastic group of nurses 7 in all counting my lead , 15 minutes away is destiny and yes most good cancer specialist do not want to eradicate us any more than needed have to have CT but no pet for my I hope final results , I know NHL is not cured but controlled it’s with me forever but that’s ok I’m going to as Sinatra said do it my way .Best wishes I have lot of pain broke my neck and 1 hands fingers numb I am going to try a treatment I foind Bovine Collagen it’s for hair , I need nail skin & BONES my main reason for testing this you can get a sea version but I eat meat this is a organic grr grazing cow version I let you all know if any of my Atheists osteoporosis osteoarthritis get better .

Arthritis not Atheists sorry can not find way to remove .

That's interesting, SeVen. I am in the UK and when I achieved remission 18 months ago I was given the option to continue with maintenance Obinutuzumab (which is similar to Rituximab) or not. I opted for maintenance as there is evidence from controlled trials that it prolongs the duration of relapse-free interval (though probably not overall survival).

Yes, there is the risk of Covid, which I had in February when my 2 grown-up daughters visited and both (separately) brought Covid with them! But other than that, I have a fairly normal life, going out regularly to many things. I do risk-assess my activities, and I would not go to a crowded theatre, and I stay away from London, which I regard as a cesspit of Covid

I have been abroad on holiday 4 times this year without catching Covid or anything else. I know of quite a few people here in the UK who have maintenance with either Obinutuzumab (which is an infusion once every 8 weeks) or Rituximab (which is a subcutaneous injection every 8 weeks). Both of these are given for 2 years. So maintenance is not out of the question, even with Covid around.

I do rituximab for maintenance but not subcutaneously. I also live in that 'cesspit of covid'. I haven't caught it yet.

No offence intended, Londoner12! Pre-Covid, I was a regular visitor to London, to the theatre, galleries etc. I do miss my trips there.

The Covid problem led to a discovery of the safest public transport in the city! 

The Uber Waterbus system is amazing - fast, reliable, central and scenic.  It extends from Abbey Wood to Richmond.   There's a big cabin area, with lavvies when required, but there's a seating area outside at the rear of the boat, so no close crowds when you're vulnerable to infection.

Highly recommended and not expensive compared with taxis.

Hi. Just read your post. So glad to know you are getting on with life. I am scheduled to start maintenance next few months. Think it has bern mentioned the O drugI. I have just finished cycle 6 of CVP and had picc line removed same day.  Still struggling with mobility in my legs and today they seem problematical ..hoping now no more chemo I will improve. Im trying not to be too paranoid around people...takes a bit of getting used to!!