It has been proposed to me that for sight impact reduction that a course of Avastin (bevacizumab) injections be administered. Has anyone had experience of this in an uveal melanoma scenario? The side effects listed are wide ranging and unpleasant...
How many people get liver scans, after a choroidal melanoma diagnosis?
I am worried, I went to Liverpool Hospital today St Paul's Unit, lots of scans and ultrasound on my eye. I have a swollen retina and its been leaking fluid, I am post PBT 14months and my vision is starting to be affected . Ive been having blurred...
It’s that wonderful time again of waiting for the result of my liver scan MRI. I’m aware of the poor prognosis but can I ask if anyone here has survived more than 18 months with liver metastasis from ocular melanoma? TIA
Just waiting for news..
I have waited over two weeks for an MRI result, is this the average?
Hi everyone, I finally got a liver/abdomen MRI two weeks ago. I was told on the day that I would hear back from the consultant there within one to two weeks. I still haven't heard anything and it has been two full weeks. Is this normal?? How long do...
Hi im louise age 41. Single mum of 3 but 1 live with me. The other two are older and moved out. I was dignosed with eye Eye cancer ocular melanoma in 2020 then after lockdown of covid i went back it had got bigger and they decided to give me proton beam...
Hi , I’m Sammy. I had over cancer, treated in August 2018 with bracial plaque to good effect. now it’s February 2024 and I am recently diagnosed with eye melanoma cancer in my liver. There are a couple of dots on the scans that can’t be properly seen...
I've left matters for a couple of weeks post "beastie nuking" to try and encompass any short term effects. However, 1st things first. Treatment. Accommodation as per the mask moulding appointment is set up for you and no hassle involved. Transport...
