Liver mets scans

Hi 1977A 

I’m Anne, one of the Community Champions here on the Online Community and, although I'm not a member of this group, I noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

Please do contact your hospital team or GP about your worsening rib pain. They won't think that you're wasting their time.

Hello there, just noticed your post, I get them every 6 months but Ido have to remind the doctors to book them for me.

Hi there, can I ask, are you up north or in the south, or Scotland or Wales? And is this an MRI or CT? And is this private or NHS? Thanks! Hope you are well,

kind regards. 

Im in the West Midlands, i have ultrasounds and its through the NHS, hope this helps.Back to Liverpool in April

Thank you for sharing all that. I only asked around because I have never been offered scans and yet my tumour was on the medium side, and now I have symptoms of mets, I am a bit concerned. (Two yrs post treatment.) Going back to Moorfields in May...take care...

Mine is only small but I did have a biopsy taken, definitely worth contacting them to request a scan especially has its a couple of months until you go back to Moorfields. Are you a member of Ocular Melanoma Patients group on Facebook? On there, there are nurses and patients going through the exact same thing x

Hi, I actually don't have Facebook, but I do check in on the informal zoom meetings with Ocumel UK every now and then. Moorfields haven't been great, they didn't even offer me a biopsy, I understand that up north they do them routinely now. Almost every member of my family has had a cancer of one sort or another! (Even young ones.) I am reluctant to waste their time, and also reluctant to know any bad news!! Thanks for the message, I appreciate it. x

I have always had mri liver scans with contrast every 6 months( for 3 years) and now more often as in my liver. I think it is now every 3 or 4 months. I had no problem at Moorfields and my eye checks have now gone to the local hospital and am due my yearly one in May. I’m in the South East ( West Sussex) 

Wow, you are 'lucky' to get those scans, but not lucky of course that they found it in the liver. I am so sorry about that. How long after treatment did they find it in your liver? I hear that 2-3 yrs is the peak time to find mets? Every 3-4 months now doesn't seem often enough now that they have actually found it? What do you think? 

I currently have 6 monthy scans of my liver but have to ask the hospital each time to get a scan. I was told, by my consultant,  I would need them every 6 months for 5 years and then anualy.