Liver metastatis

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It’s that wonderful time again of waiting for the result of my liver scan MRI. I’m aware of the poor prognosis but can I ask if anyone here has survived more than 18 months with liver metastasis from ocular melanoma?

TIA

  • Hi  

    I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.

    While you're waiting for replies it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • I get my first scans this week and it is that "great unknown". All I can say at this point is these figures are always "on average" and with treatment advances, likely to make that a longer time.

    Can't stop hoping.

  • Yes probably best not to get too bogged down with the stats. Good luck with yours. The waiting and lack of control over that is a struggle at times. 

  • Hi,
    are you a member of ocular melanoma? If not join. 
    There’s a lot of us on there and there’s so much knowledge and support. 
    you can ask any question and you will most likely get your answer. 
    there’s people in the group that have had mets to the liver and are still going 6 years on. There’s also a group you can join if you do get mets, and apparently there’s a lot of knowledge on treatments and experiences. 
    i would really advise joining. 

  • Hi Scilly Chick

    i have had contact with them previously but opted not to join as I didn’t want to overly focus on my OM at the time and thought it might be depressing. My wife is a member and filters the news so I only get told the chirpier stuff. It kinda works for me. Thanks for advising