It’s that wonderful time again of waiting for the result of my liver scan MRI. I’m aware of the poor prognosis but can I ask if anyone here has survived more than 18 months with liver metastasis from ocular melanoma?
TIA
Hi Surfer boy
I'm not a member of this group but noticed that your post hadn't had any replies yet. Responding to you will 'bump' it back to the top of the discussion list again.
While you're waiting for replies it would be great if you could put something about your diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
I get my first scans this week and it is that "great unknown". All I can say at this point is these figures are always "on average" and with treatment advances, likely to make that a longer time.
Can't stop hoping.
Yes probably best not to get too bogged down with the stats. Good luck with yours. The waiting and lack of control over that is a struggle at times.
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