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Hello everyone, my husband was diagnosed with both CLL and SLL just over two years ago and is still on 'watch and wait' so we are on the 3 monthly blood tests/hospital appointment cycle. He hasn't told his parents yet and we haven't told our two teenage...
Hello, I'm Doddles12 I was in A&E with a chest infection when the Doctor sent me for a scan. The news that he gave me was a shock that I had cancer on all of my organs. I wasn't unduly shocked as of this year I have been unwell for 22 years after an accident...
Hi everyone. I have just joined this group and I have CLL. I was formally diagnosed last year when I was 50, but the symptoms were visable 2 years prior. I had countless blood tests over those years to get an idea of my white blood cell counts and to...
Hi i was diagnosed last week. Im 35 and female so this is rare for my age. Im worried as expected and fearful of the quality of life i will lead from now on. Im not sure what to expect or do. Im still waiting for my CT scan to find out what plan is from...
Hi all,recently diagnosed with grade one breast cancer,also have CLL,am on watch and wait,no treatment for it so far,so all ok in that department,was booked in for lumpectomy this week,but it has been put off until next week. my question is,has anyone...
My partner has an appointment with the haematologist early next month to confirm blood result showing potential CLL. The only symptom my partner has is vertigo, which came on quite severely, and suddenly last month. Has anyone else experienced vertigo...
SLL/CLL diagnosis confirmed yesterday and put on watch and wait . I am all over the place emotionally sometimes fine but sometimes I feel in a very low place can anyone advise me on how to cope with this condition .
Hi All, I was diagnosed with SLL last summer. Thankfully SLL is pretty stable, I do have symptoms but am presently on ‘watch & wait’. If I’m honest it all felt quite surreal, being told that you’ve cancer but that it’s not initially (or maybe never...
Hi all, I have had a lump under my jaw which I believe is a lymph node. It is quite big but it isn't there consistently, it comes and goes, usually swelling by the end of the day. I also have had diarhoea for over 7 weeks. The lump has been showing itself...
I was diagnosed with HCL last November 2020 and have since had bone marrow biopsies and cladribine. HCL didn’t clear after 1st treatment, so have undergone my second round. Would love to talk to any other sufferers, to compare notes, it is quite rare...
