Dizziness (vertigo) with CLL

Hi again Molls58, the groups not that busy at the moment but let’s look for someone with furst hand experience.

Do check out the Lymphoma Action site as they have a number of ways that you can increase your access to people who can help both as carers and patients.

lymphoma-action.org.uk/support-you

Hi Mike, thank you once again. Good sign the community is not very busy.

Hello Molls58,

I read your post and can say that my mum who had CLL did get extreme vertigo and sickness. 

Sadly mum passed away last year but she was 90! 

Regards

Anne

Hi Anne, thank you for your reply. I am so sorry for your loss. Unfortunately, my partner has since been diagnosed with TPLL, which is a rare and aggressive form of leukaemia. He had a CT head scan which was clear. Currently, being seen by ENT who believe his dizziness is BPPV vertigo?? Who knows, you put your faith in the medics. 

Hallo, I've only just seen your post.  I'm CLL/SLL, W&W for nearly four years.  I occasionally experience vertigo, but almost always after being bent over, so I suspect it's labyrinthitis.  My ears are rubbish, anyway.

John