Anyone currently being treated for HCL?

Hi JOBHCL and welcome to this corner to the community, I am Mike and I help out around our blood cancer groups.

Lets see if folks with HCL are looking in but you can put HCL into the search tool near the top, hit ‘anywhere’ then look at all the older post and as always you can hit reply and see if the folks are still active on the site.

Hi, I did a quick check.

Google to Healthunlocked / Leukaemia care / Hairy Cell Leukemia and you will find other patients there who might assist you.

Dick

Thanks Mike, will do

Thank you

Hello I just saw this question I’m actually in a different group in this community but my husband was diagnosed with HCL in 2013. After treatment with Cladribine, if I remember correctly, his six monthly blood checks have been clear since, to answer your question about remission. His next appointment is in a couple of weeks. Like you said we were told it was quite rare with only about six other people in our area at the time of diagnosis. Hope this helps