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Hi, I'm new to Macmillan forums. I was diagnosed with cll in May although the Haematologist recons that I must have had it for around 7 or 8 years as all of my blood tests in the last 10 years came back with high white cell counts when I didn't seem to...
I was wondering if any CLL diagnosed people on this Forum are a little worried about the Autumn roll out of the Covid Booster/Flu vaccine. I have had all my Covid Vaccinations up to now, but I feel a little anxious about having the Flu vaccine alongside...
Hi my name is Ali, ime a new member, diagnosed Cll about 3 yrs ago at 47. Can i just ask without been to personal as ive spoke to my consultant many times and i dont really get a lot of information back. Or i get told its not a side effect of worry...
Hello All I have had CLL for two years now and I am currently on Watch and Wait. I had an ultrasound today as I have had some upper tummy discomfort and indigestion. I have been told I have gallstones. Has any one in this Community had a similar...
I am new to this group. I was diagnosed in Jan 2022 with CLL. My GP sent a text asking me to have a blood test as routine blood tests over past 2 years had shown increase in white blood cells. I had no idea what I was being tested for and when given the...
My partner has recently been diagnosed with CLL (he is 67 years of age)and would like to have heard of anyone else with the same condition. Maybe treatments they have received and the outcome, We have heard of a treatment named Car T cell therapy. ...
Hello. I am new to this Community, and was diagnosed with CLL two years ago after many chest infections and coughs. I am on Watch and Wait. I was very positive at the beginning and have not thought much about my diagnosis, as having been told I could...
I know that Evusheld has not been approved by the NHS even for immunocompromised people like us. However, I have heard on the grapevine that some people have managed to obtain it in the UK from private clinics. I can’t find any reference to this online...
Hello, I've joined this group to ask you all, please, for experiences with CLL as a background complaint. It was picked up about fifteen months ago during blood tests around what turned out to be mestasising stage four bowel cancer, affecting liver...
Hi, I’ve just finished Cladribine to treat HCL. How long are people isolating after chemo? Thanks in advance. Lisa
