Newbie

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Hi all.

New to the group too. Diagnosed a few weeks ago. 

I'm 57 and have been feeling unwell for around a year. Put it down to menopause and another condition I have. GP kept doing blood tests though as he wasn't sure and spotted the rise in numbers (or something like that), so referred me to haematologist.

I'm on watch and wait with one raised node in neck and one in groin. Doing my usual way of coping by completely ignoring it lol. So thought I at least should join a forum. Haven't told anyone as I'm the carer for most of my family. Don't see the point until I need treatment of telling friends or family. 

Have 2 dogs who keep me busy, suddenly appreciating my garden and trying hard now to fix up my house. 

Hope you're all doing well and appreciating this golden spring/summer we are not having! Wink

Thanks for reading. Take care x

  • Hi  and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Blood Cancer groups.

    I don’t have Chronic lymphocytic leukaemia (CLL) but I was diagnosed way back in 1999 at 43 with a rare, incurable but treatable type of Low Grade NHL eventually reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I do appreciate the challenges of this journey rather well.

    Let's look for some of the group members to pick up on your post. You can also look through the various posts (hit the main group name and scroll down) and as always you can hit reply and ask some questions and see if the member is looking in.

    Do check out for a local Maggie's Centre in your area as these folks are amazing and most centres do run monthly Hematology Support Groups….. the one I attend does have a few folks with CLL in it so worth checking.

    Do also check out the Lymphoma Action website. Lymphoma Action is the only UK Lymphoma Specific Charity who have lots of good reliable information, videos etc. CLL although it has the word Leukaemia in it, in Hematology terms actually comes under the umbrella of Low-grade non-Hodgkin lymphoma - yes very confusing I hear you say.

    Lymphoma Action run regular Support Platforms both for patients...... I highly recommend these groups as there is nothing better than talking with other who have walked the journey.

    They also have a great Lymphoma Action Buddy Service where people can be linked up with someone who has walked the same treatment journey. They also have a Lymphoma helpline on 0808 808 5555 where Sharon or Nic will be on hand to give you some support - open every week day from 10 till 3.

    Always around to help more or just to chat

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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