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Hi After a rather scary 6 weeks, where my husband was first diagnosed with neutropenia, then ended up in hospital a few weeks ago with pneumonia and neutropenic sepsis, we finally got results yesterday that he has hairy cell leukaemia. He's to start...
On the 6th of December I contracted Covid, I contacted the hospital on the 7th was then prescribed anti viral tablets but I had to stop the chemo tablets. After the 5 day treatment I retested myself and found that the bottom line on the Lateral Flow Test...
I have had a winter virus two years in a row. Symptoms Could hardly lift head off the pillow for 36 hours Oscillating temperatures initially Zero appetite for 4 weeks No cough Negative covid test General fatigue for 4 - 6 weeks Could this be related...
Hello all, I was devastated to find out that I have CLL at the age of 48. I’m very fit; into mountain biking, road biking and the great outdoors. I have 2 gorgeous kids and own my own business. My lymph nodes are already raised and I have an enlarged...
Hi Good Evening everyone, my name is Simon. I was told in the last few days that I have been told that I’ve got cll it’s called for short. Just wondering if any one had any information on it as it’s still early days for me and my wife. Thank you
I've had CLL for over 11 years and have the chance to start taking Acalabrutinib. Wondering if anyone on here is taking it, or considering it. Any comments or feedback would be greatly appreciated.
Hello, have just been diagnosed with HCL and about to start my Chemo treatment. Would be interested in talking to people with HCL and how there treatment and progression went. Thank you. Nick.
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
I’ve had my haematology appointment as you know my glands were getting so large causing problems. Antibiotics helps but can’t stay on them so awaiting a pet scan then looks like I’m going on treatment not that my cancer is worse it’s because of the...
Hello, I had a blood transfusion on the 14th October and a second on the 1st November, 3days after the 2nd transfusion I started experiencing lower back pain, pains in my thighs, itchy hands and feet, low blood pressure, low body temperature and dizziness...
