Hi I am new to the group and this is all new to me ,dad got diagnosed with chronic leaukmia Thursday gone ,been in a daze all weekend, my dad also as mental health problems which at the moment are under control with physcatrc medication and weekly mental...
Hi, I would like to introduce myself to this group. I have just been diagnosed with CLL I am a fit 71 year old and shocked to be told I have this... My sister passed away on 22nd January with CNS Lymphoma, but she started with a rare but similar blood...
Hi all, I was diagnosed with CLL a couple of weeks ago. I was quite surprised because I didn’t and still don’t have any symptoms. It was detected in a routine blood test. I am 49 years old with a youngish family. First week was a bit tough, but I am...
Hi After a rather scary 6 weeks, where my husband was first diagnosed with neutropenia, then ended up in hospital a few weeks ago with pneumonia and neutropenic sepsis, we finally got results yesterday that he has hairy cell leukaemia. He's to start...
On the 6th of December I contracted Covid, I contacted the hospital on the 7th was then prescribed anti viral tablets but I had to stop the chemo tablets. After the 5 day treatment I retested myself and found that the bottom line on the Lateral Flow Test...
Hello all, I was devastated to find out that I have CLL at the age of 48. I’m very fit; into mountain biking, road biking and the great outdoors. I have 2 gorgeous kids and own my own business. My lymph nodes are already raised and I have an enlarged...
Hi Good Evening everyone, my name is Simon. I was told in the last few days that I have been told that I’ve got cll it’s called for short. Just wondering if any one had any information on it as it’s still early days for me and my wife. Thank you
I've had CLL for over 11 years and have the chance to start taking Acalabrutinib. Wondering if anyone on here is taking it, or considering it. Any comments or feedback would be greatly appreciated.
Hello, have just been diagnosed with HCL and about to start my Chemo treatment. Would be interested in talking to people with HCL and how there treatment and progression went. Thank you. Nick.
Hi all Been diagnosed for 17 years with CLL and looks like I shall now need treatment in New Year once they sort out my chest infection - Good to be on here (Well not really ...but you know what I mean)
