Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
I was wondering if any CLL diagnosed people on this Forum are a little worried about the Autumn roll out of the Covid Booster/Flu vaccine. I have had all my Covid Vaccinations up to now, but I feel a little anxious about having the Flu vaccine alongside...
Hello. I am new to this Community, and was diagnosed with CLL two years ago after many chest infections and coughs. I am on Watch and Wait. I was very positive at the beginning and have not thought much about my diagnosis, as having been told I could...
I know that Evusheld has not been approved by the NHS even for immunocompromised people like us. However, I have heard on the grapevine that some people have managed to obtain it in the UK from private clinics. I can’t find any reference to this online...
Hi, I’ve just finished Cladribine to treat HCL. How long are people isolating after chemo? Thanks in advance. Lisa
Hi i was diagnosed last week. Im 35 and female so this is rare for my age. Im worried as expected and fearful of the quality of life i will lead from now on. Im not sure what to expect or do. Im still waiting for my CT scan to find out what plan is from...
Hi all,recently diagnosed with grade one breast cancer,also have CLL,am on watch and wait,no treatment for it so far,so all ok in that department,was booked in for lumpectomy this week,but it has been put off until next week. my question is,has anyone...
My partner has an appointment with the haematologist early next month to confirm blood result showing potential CLL. The only symptom my partner has is vertigo, which came on quite severely, and suddenly last month. Has anyone else experienced vertigo...
SLL/CLL diagnosis confirmed yesterday and put on watch and wait . I am all over the place emotionally sometimes fine but sometimes I feel in a very low place can anyone advise me on how to cope with this condition .
I was diagnosed with HCL last November 2020 and have since had bone marrow biopsies and cladribine. HCL didn’t clear after 1st treatment, so have undergone my second round. Would love to talk to any other sufferers, to compare notes, it is quite rare...
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