I'm 70 and was diagnosed with CLL about 18 months ago. I have been on watch and wait since being diagnosed, whilst also being treated separately for prostate issues. Having just finished a month's radiotherapy for prostate cancer, I now have a meeting...
Hi, I finished 15months of immunotherapy in December and am going for my follow up appointment in the morning. I will hopefully know where I stand at the moment. I’m feeling really low and tearful. I’m also on the tail end of a cold so that’s not...
What is the best treatment for CLL, I’m unsure what treatment to have. Thanks
Hello all, I was hoping to draw on your knowledge and wisdom. My dad lives with CLL, with 3 relapses along the way over the course of 14 years. On our recent visit with oncology we were told he has relapsed again with no further treatment options...
I just read a snippet of someone diagnosed with CLL.. OF COURSE you are worried, confused and looking for quick answers. I'm sorry there aren't any but every year as time goes by the worlds scientific brains are looking to find the answers you are...
Hello everyone I've just had my six months phone chat about my NH Lymphoma,I think I've been on watch and wait for about two years,with very little change to my health except my tummy,I have a poor appetite and when I do eat I'm bloated and feel uncomfortable...
Hi Everyone, I was diagnosed Feb 2016 with CLL and put onto watch and wait. generally the bloods have gone well apart from a couple of spikes. Im now being tested annually. One thing that I keep forgetting to find out though is there any specific...
Hi - I have been in remission from CLL for 10years but unfortunately it has relapsed and I need treatment again. I have been given two options: Zanubrutinib for long term or Combo of ibrutinib and ventoclax for approx 2 years. Just wondered if...
Trying to understand how chemotherapy treatment in CLL mum has just had her first cycle of treatment ( chlorambucil ) she says her white cells have gone from 250,000 back to 23,000 as I was not at the appointment with her , I’m trying to understand...
Hello everyone. This is my first post on this site. I hope I am among possible new friends in similar situations. In brief, well as brief as I could possibly be. 6 years ago ( now 64) I had to finish my trade due to an unknown problem with my legs...
