CLL Treatment

Hi again Pandora it’s good to vent and this is a safe place to do this…..

I have no answers…… during my hard times the only thing I could do was to push through the storms and look for the slightest glimpse of light…… and let’s look for your appointment to go well((hugs))

Good morning Highlander.

thank you for replying. I’ve had a good few hours sleep and don’t feel as tearful this morning. I think my little rant helped. Just typing out how I was actually feeling was a relief. 
Life is precarious and unpredictable so no matter what happens I just want to breathe in acceptance and quietly move with it. I’m also still learning that being kind to yourself and others, keeps my heart from being hard with to much self pity and bitterness. Warm regards x

Me again Highlander.

Oncology appointment went well. Consultant really pleased with results. All my bloods are back to normal. He said that the future with immunotherapy is a game changer and also not as toxic on the body as Chemotherapy. I know this is not a cure of CLL but knowing I’ll be okay for awhile longer is a huge relief. He said it’s what they aim for, a dormant level. So, onwards and upwards.

monitoring will continue until everything decides to wake up again. I’m in my 70s so if they can keep me going for a few more years watching my grandchildren grow and taking care of my husband I’ll be content. All the best to you and yours x

Good to hear that you had a good sleep….. being kind to yourself is important….. and that your appointment went well.

Back in 1999 when I was diagnosed with my first type of Incurable T-Cell NHL at the age of 44 the then median survival was set at 3-5 years in all the information I was given.

But the developments in treatments and despite my second aggressive T-Cell appearing in late 2013….. I am still here living as good a life as any 70 year old can be living.

As we move into Spring there are more chances to get out and enjoy fresh air and listen to the birds sing…… life is for living.

’Talking’ is also very helpful….. I looked back at your posts and I see that I have already highlighted Lymphoma Action various Support Platforms…

If you are in the UK do have a look at the various ways of connecting in with others who are navigating the bumps in the road…… based on my experience, this helps a lot.