Finding It hard being on watch and wait during isolation and anyone else had cancelled hospital appointments

FormerMember
FormerMember
  • 2 replies
  • 7 subscribers
  • 2221 views

Hi

I am in my 10 week like many being shielded as I have CLL. and at present on  watch. I normally work  so have instead worked  from home. I am the only wage earner in my family so I at times feel I must ensure I am well both physically and emotionally.

I acknowledge the tiredness i fell is part of having CLL   but what I am struggling with is the mood swings which I never have had before. Does anyone else experience these?

Also twice now my check up appointments at the hospital have been cancelled. My next appointment will not be until September which will make it a year. I appreciate that my levels are not a concern but I was wondering please whether anyone else has had that happen to them. 

  • FormerMember
    FormerMember

    Hi

    Yes my appointments have been cancelled, it is a worry, last time my blood count changed drastically I felt no different really. The government keep telling us nhs is open for all, well that's just lip service 

  • FormerMember
    FormerMember in reply to FormerMember

    Hi,

    I am sorry it has happened to you as well . I am fortunate I am well but like you my blood count as changed. I hope the advice the government gives us covers everyone including watch and wait .Also that is easy to understand and we are not forgotten.