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I have found that on occasions I have quite severe pain in my lower leg bones. This pain is so strong it makes me want to scream out. It is also accompanied with lower leg muscle cramps so I have double problems. My haematologist thinks this is probably...
I was diagnosed in October 2017 with CML. Now on my way to coming off Nilotinib. I am happy to support in any way.
I was diagnosed with CML late July this year and am currently on Imatinib and also taking Metoclopramide to counter queasiness.I have started experiencing loss of appetite over the last week and was wondering if this is a common side effect?
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hi all so today has been abit of a shock…I turned up at a and e on Sunday due to abdo pain. They did blood test which showed high white cell count and advised may be leukaemia. I then went onto have a GI bleed and poorly and tests today came back as...
Hi everyone! I got recently diagnosed with CML, and I am a 50 year old woman. I do not live in UK and I hope it is ok with you (there are no similar communities where I live). My journey is about to start in a few days with Nilotinib. I do not think...
How do people cope mentally with the impact of this diagnosis as I’m really struggling to hold it all together
Hello. I'm 42 yrs old female and I'm newly diagnosed 2 weeks ago today and have been taking imatinib 400mg daily for 6 days. I also have multiple allergies and oral lichen planus which is an autoimmune disease. Initially my haematologist thought that...
Hello my name is Dudley 12. My husband was diagnosed in March 2021, with CML. After lots of noisy deep burps after eating food and having extreme belts of wind morning noon and night. I asked hubby to contact the doctors, as this was so abnormal, this...
I was diagnosed this week with an uncommon version of CML with 4,000+ platelets and most everything else normal. I have just had a bone marrow aspiration, have acquired Von Willebrand disease from the high platelets, so no idea of anything more than that...
