Hello my name is Dudley 12. My husband was diagnosed in March 2021, with CML.
After lots of noisy deep burps after eating food and having extreme belts of wind morning noon and night. I asked hubby to contact the doctors, as this was so abnormal, this human instrument he became, I have to admit was getting on my nerves too.
This one particular day, Hubby said it was food poisoning from dodgy street food he had eaten, while visiting our son.
anyway after speaking with the GP, blood test was taken, to be told over the phone the next day (covid times) he had some form of cancer, and he would hear from the hospital within the next 2weeks for an appointment in the oncology dept.
we was both so taken back by the GP response. The next 2 weeks was a blur.
Hubby went to the hospital appt on his own, while I sat outside of the hospital on my own too. At this stage we haven’t told any friends or family until we know what we was dealing with ourselves.
imatab, was first described, the side effects was not pleasant, but hubby continued working full time as normal.
18 months later, hubby was recalled for more blood tests, he medication needed to be changed,
So here we are 2 years later, hubby says he’s fit, well and enjoying life, while I see the changes in him, and struggle sometimes to cope.
Thats our story so far, as s caring wife of a CML hubby.
Hi dudley12 and welcome to this corner of the Community although I am sorry to read about your husband's diagnosis and the journey you are both on. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but I was diagnosed way back in 1999 with a rare, incurable but treatable type of NHL reaching Stage 4a in late 2013 so although my Blood Cancer ‘type’ is different I do appreciate the journey rather well...... and I have to say that for the first 14 years of my diagnosis and journey I was living a normal-ish life. Working in a demanding teaching job on a full timetable.
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you. You can also click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
It’s a challenging time for you so you may want to use the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provide cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear. We also have our Ask an Expert section but do allow a few working days for a reply.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and also general groups for Carers.
Always around to help more or just to chat
