Hi everyone, We’ve launched our annual survey for 2024! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
I was diagnosed this week with an uncommon version of CML with 4,000+ platelets and most everything else normal. I have just had a bone marrow aspiration, have acquired Von Willebrand disease from the high platelets, so no idea of anything more than that...
Hi, I was diagnosed 2weeks ago with CML after going to A&E with back pain .. I’m feeling very lonely even though I’ve got everyone with me . I’ve had my bone marrow taken and a weeks worth of Chemo.. now on imatnib and it’s doing a great job but my platelets...
I just want to drop in past to wish all our new and long standing group members and their families a healthy and safe 2023
Had a phone call from my "cancer doctor" the other week and have received some good news about my treatment of CML. I was only diadnosed with CML back in February 2022 and already thanks to the Imatinib drug not only am I responding well to it but the...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Good day. My name is Yurii, I'm from Ukraine. I was diagnosed with CML in 2016. I started taking imatinib, unfortunately in 2020, there was no response to this drug, blasts appeared. I started taking nilotinib, my condition improved. Please tell us...
Been on imatinib for 7 months and I’ve had this uncomfortable mouth which is dry, sore and have a metallic taste. anybody had these side effects
Hi all I’m new to group and wanted to post some of the side effects I get. I’m on 400mg of Imatinib. fitstly I’ve had a rash all over but mainly on my upper trunk. Told to take antihistamine and use creams. But it not gone yet. secondly nausea which...
Hello all I was diagnosed 26,10,21. Bit of a shock. Iam experiencing a sore scalp . I have orded jennifer young scalp balm, but I was wondering if anyone else experienced the same and what shampoo they are using. Kind regards su
