Scared and confused.

Hi Rexy 2020.. I am 64 and I was diagnosed with secondaries in all my bones in March this year after a very persistent physio who was treating me for a pulled muscle in my shoulder insisted I had a full body scan.

I am on the same treatment as you. I have Denosumab injections every 4 weeks and they are given by the practice nurse at my surgery

The injection does sting. They usually warn you it feels like a bee sting. The only way to avoid the sting is for you to collect from the pharmacy so you can warm it in your hands to blood temperature before it is injected. 

Palbociclib I take daily 125 is my dose

 Few side effects so far. Tastebuds have now gone which is annoying as I miss my tea greatly 

Ask lots of questions is my advice 

Hi

I am sorry you have joined the cancer club. I am nearly 55 and post menapause. I was diagnosed in September this year with cancer behind right nipple with secondaries in spine, ribs, clavicle and sternum. Secondaries were found first. I am on the same meds as you and  have just started my second round.

The treatment is the same for everyone after menapause. I have been told my first scan will be in January to see if the treatment has slowed the cancer down.  

I get the injection into my stomach as have been told it's better than in the arm; it stings but this soon wears off. The treatment can cause muscle and bone pain. The worst side effect is the hot flushes. 

Drink plenty of water whilst on the meds. They have lowered my dose of palbociclib as I ended up neutropenic which delayed treatment for two weeks. I felt a bit shivery and had a migraine with vomiting apart from that I felt fine, I thought I had a bit of a water infection and took a sample to get checked, I thought I was a bit dehydrated due to been sick but it was the water infection. The hospital said that I had picked up on things really quickly and did the right thing going to hospital when I did. 

Good luck and keep me posted on how you get on.

Joanne

Hello

Im 32 breast cancer secondary to the bones etc I may be pre menapausal but I have injections every month but me in menapausal state so I can have lethrzole my cancer markers gone down since diagnosis.

I unfortunately only had the bone strengthening drug denaasaub once to bring too low of calcium =( so even though was on calcium d3 didn't raise them enough after being high enough one I'm trying something different meanwhile the other drug you mentioned u didn't finish second cycle due to side effects of sore mouth oral thrush was askedif would take few months ago but too anxious too..

When dhoy mean operation so you mean removing the lump or xxx love and hugs Cazzy xxx

It's been tough.  I kind of retreated into a shell of depression, which isn't good.  I'm on my 7 days off the palbo, and I must say that it's played merry hell with my bones so much pain in my shoulders. I'm going back on the 30th to see how things are going, couldn't start the denosumab as my vit D was (9!) so have been on high does vit D. Hot flushes and mood swings are the pits!  My poor husband :( With my IC it feels like I have a UTI most of the time so I need to keep that in check. So many raw emotions so much anger just flooding out.  Normal? Or am I going insane?  Feels like I'm on a rollercoaster that never stops. Even as I write this I'm not sure what is going on in my life, cry, scream, hide, what do I do?

Hey

Lethzole pays hell for my bones since they swapped brand over from accord to glen mark

I would keep an uti on possible uti think pablo can be known for it inwas taken of pablo when had sore on mouth like lips covered in white was asked to go on it few months ago in refused but if came to it would go on it again but lower dose.

Wow that is low vitamin d amount I've only had my denasasaub injection twice this month being my second because my calcium was low so in calcium supolemenrs ironary is denasasaub reduces calcium so in january I'm having bloods taken at gp  surgery and then then oncology out patients will ring me if need come in or not for the jab depending what blood test shows.

My depression been pretty bad I'm now at highest of citalopram you can get inwas on 20mg when first diagnosed been on it since 2013 then upped it after discharge then upped again as mum been diagnosed with cancer and been referred to physcolgist next month day after my birthday infact inalaonhave lorazpam forntimes inget anxious 

Its rollercoaster which never stops imo my first scan showed shrinkage which is brilliant but then been referred to medical oncologist on xmas eve due to horrific back pain dont wanna be on pain relief all my life and I'm on quite high doses 

I'm not long up managed spill tea all over me in bed =( quilt soaksd and mattress talk about butter fingere

Gxxxxx

Hi

They changed my Letrozole brand over from accord to glen mark a couple of months ago and hot flushes etc got worse so I asked the Dr to request the accord brand for my next prescription which they did and thinks went back to normal. Still get hot flushes but not as bad. 

I agree it's like been on a roller coaster. I too could not have my monthly denasaub due to bloods. So far I have managed to keep off the anti depressants. I am waiting for my scan to see if the cancer has slowed down. So this could change. I try to be positive but it gets harder when I feel a now ache or pain.

sorry to see your mum has been diagnosed.

Good luck

Jo

Hi  razzy. So sorry to hear about your pain. I have been diagnosed  3 days ago and am quite frightened not knowing what to expect. 

I have a wonderful supportive family and I hated having to tell them . 

 I think you are very brave and hope the scans go well for you.

All the best.