Diagnosed De Novo this week

Hi Kerry/Cumbrianlassc90a1c 

I'm not a member of this group but just wanted to welcome you and to say that I'm sure you'll get plenty of help and support from the other members if there's anything that you want to ask.

Wishing you well with your treatment

Hi Kerry, so sorry to hear you’ve had to join our club  

I’ve got a large tumour on my liver found by chance in July 23. My primary bc cancer was in 2018. I’m on Letrozole and a similar drug to yours which is Abemaciclib. I’ve had ups and downs but I’m still here having stable scans over 2 years later !  I know it will change at some point but once I’got my head around it (which took a while), I decided to go and enjoy life the best I can. Sure, some days I don’t feel too good but on other days I get out and about and have had many holidays! There’s great support on here and breast cancer now have regular sessions online and face to face if you feel you need more  support. Good luck on your journey xx️

There’s also new treatments coming out all the time so I try to be hopeful! 

Hi Kerry

i was diagnosed with lobular breast cancer which when I had MRI was found to be larger and mastectomy was now the treatment. I had just started to get my head around it when I had a scan and like you they then found it had spread to my spine so de novo.  I have been on treatment for a year and my breast tumor has shrunk and I am now being recommended for mastectomy again.  So hopefully you will have a good response too.

Aww kerry I'm so sorry to hear this. I've just been diagnosed today with stage 2 hormonal breast cancer. It's also in my lymph nodes so I need mri and ct scan. Have they said what your treatment will be now that its spread? Im also a mum of 2 girls 9 and 14. Im 41 

Thank you Bonnie2 so good to hear that you are responding to treatment and other options are being recommended. I’m just waiting for my first lot of scans after 3 months of treatment so positive stories like yours really help. 

Hi Giz it’s such a shock getting a diagnosis and the wait for further results is just torturous. I hope you get some positive news from your scans and aren’t waiting too long. 

My treatment is mainly hormonal. I’m having a monthly injection of zoladex which has put me into menopause, daily Letrozole tablets that mop us any eostrogen that might be floating around and a targeted anti cancer drug that I take 3 weeks on, 1 week off. I’m also having calcium and vitamin D tablets and a monthly bone strengthening injection - it sounds a lot, it is a lot, but so far all been quite manageable - few side effects and menopause symptoms. 

I honestly hope you’re not joining our stage 4 club but if you are believe me there is hope, it may not feel like it but there is and lots of support here. Keep us posted if you can x 

Hi ladies, had my 3 month scan results today and I’m still stable.  I feel so grateful for these targeted drugs. I have been on first line now for 2.5 years and they don’t want to see me now for 4 months. I was really expecting the worse today, as they initially said I could get 12-18 months on this drug.  Both of my big toe nails fell off  this week but I don’t care! Lots of hugs Xx

This is great news and gives me hope! Thanks for sharing with us. Hope you’ve got something nice planned to celebrate x 

I had a big glass of wine when I got home! ️ Hope your treatment is going well xx