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I met with my surgeon on Wednesday. I've had 2 previous surgeries, in January and February, followed by 4 cycles of chemo. A third surgery is scheduled for 21/07 - but she was shaking her head, expressing doubts as to whether she would 'get it all'. I...
Have started on the secondary risk drugs and leuprorelin (prostrap) had no issues but my goodness the letrozole hormonal migraine has been the worst pain I have ever experienced. UTI was bubbling so I have started to take probiotics, cranberry extract...
Hi all I had my final radiotherapy treatment and consultation last week. During the consultation it was dropped into the conversation that there was no Ribociclib available! Then told not to worry as I am on the waiting list. I find this terrifying...
Hi I have been taking Letrozole for 18 months and have always managed to get Accord brand. I feel great !! I have had to work hard going round to different pharmacies to see if there was stock available - on occasions I visited 18 pharmacies. It can be...
Hello I start radiotherapy tomorrow. Im organised with my creams and have been applying beforehand. Im thinking going without a bra on and a vest top or tshirt that I can pull down or take off over my head. I feel it will be easier after so I can...
Just been told by my pharmacy that they will no longer order in Accord exemestane even though I’ve explained how much worse the side effects have been on others. Hubby was with me and he said I should just let it go and not let it impact my mood. I’m...
I've just changed meds from Anastrozole to Exemestane. I'm wondering if anyone found the Exemestane better. On Anastrozole i was in terrible pain all over my body including hands. I felt very fatigued, had terrible hot flushes and just felt I had no quality...
I changed to Exemestane after just over 3 miserable months on Anastrozole. Exemestane, certainally over the first 3 months was much more tolerable. However I am now just over 5 months into treatment and I am finding the tiredness, stiffness and joint...
A long time ago, well it feels like a long time ago I had a double mastectomy and a full node clearance. It's about 14 weeks actually. I sailed through chemo so predicted trouble with the surgery. Having recovered now from sepsis and cellulitous it is...
After waiting for 3 months I’ve just had a single mastectomy (2 weeks ago) for ILC and want to know how best to deal with the scar. I know there’s a lot of guidance on scar massage, but what creams or oils do you recommend…..my ‘previously occupied territory...
