Letrozole and Migranes

Hello Heidi,  migraines suck for sure and my suggestion would be to ask your physician to switch you to another hormone blocker.  Personally and this is my opinion I just don’t think adding another medication is a good idea if you can try a switch.  I was on Anastrazole for a little over 3 1/2 years and had done pretty good but then it was like my side effects got too much to handle do got on letrozole last November and doing ok.  I only have 1 year left on letrozole and boy am I  glad.  Have you heard of d-mannose powder for UTI’s?

Hope you feel better.  Good there are options for us.

Hi Heidi54 - I used to get terrible headaches but I took my pill at night . My oncologist advised me to switch to the morning and it has worked. I still get other side effects though . Hope this helps 

I have an appointment with my oncologist on 19th June and so going to see if how the letrozole settles. Migraine resolves after 48hrs and whilst I do have a background headache, I want to be hopeful that this is my body adjusting to no oestrogen.  It is worrying to read experiences where people have been fine on a drug and then years in, side effects suddenly flaring.  Very depressing. 

I am taking mine in the morning  already. I guess it really is so specific to the individual. I had hormonal migraines before each period but they settled in 24hrs and never this bad.  The oncologist seems to be taking it seriously and said it is not a symptom I should have to put up with, so hopefully it will be resolved one way or another. 

When I first started with Letrozole, I used to have dull headaches all the time with no pills touching them.  Then reread all the info that comes in the box and it said to take with glass of water so since then I've been drinking a fair bit of water with the pill which has definitely helped.  I take mine at night so try to take at 8pm ish so that I've been to the loo before I then go to bed/sleep.  Good luck x

So after 3 migraines requiring coodamol and anti migraine medication, my oncologist is taking me off it.  I was drinking over 3ltrs of water a day and still having migraines every 2.5 wks lasting 3 days and then continuing dull headaches.  We are going back to basics and then looking at other options.  

I am relieved as I pride myself being a tough cookie and could cope with joint pains and hot flushes but the ice pick to my brain was my hard line!! 

Just posting in case anyone else reads this and wants to be empowered to have discussions with their oncologist.  Our reactions to different drugs are so personal and if you are suffering - don't sit quietly - speak up and see what other options are out there. 

I’d say you gave it a good go and glad docs listening to you.  Hopefully they’ll sort you with something that doesn’t have bad side effects that you’ve had.  Lots of love and hugs x