Struggling, can’t stop crying. Feel like no light at the end of the tunnel!

I had 4 doses of EC in 3-weekly cycles. I did more or less feel normal for the last 10 days or so of each cycle. Before that it was tiredness, headaches, diarrhoea and loss of taste, plus I particularly disliked the bone pain that came with the Filgrastim. 

Thanks for replying!

Im only 4 days post 1st infusion and struggling. Really tired and weak and breathless, feel like my legs are going to give way. Horrid taste in mouth too and not much appetite. Struggling to eat as healthy as I should be!

I had pegfilgrastin on Wednesday and so far no bone pain but I presume it starts later?

Did you find the effects to be cumulative? I’m worried about another 3 of these!

And that’s before surgery, radiotherapy and then more immunotherapy and chemo!

xx

I found I was able to manage the cycles a bit better as time went on, I could pre-empt an issue based on when it happened previously. I hope you feel better soon.

Unfortunately I have metastatic TNBC. had surgery followed by 24 weeks of chemo initially (4 EC then 12 weeks of Paclitaxel). Before I got to the end, liver mets were found and I then had pembrolizumab plus NAB-Paclitaxel as well as radiotherapy and a couple of ablation procedures on my liver. I have been in remission for the last year so awfully grateful for the pembro, even though it caused a raft of issues.

Sorry to hear you are metastatic but pleased you are in remission and doing well!

I have also been on pembro since starting my journey in December. I had 12 weekly nab paclataxil alongside. My main issue now with the pembro is the horrid itchy rash I get in my face! Feel like I’m on constant steroids and steroid cream! As soon as it goes it comes back! X

I had a rash on my chest after the 4th infusion. Later on I got kidney nephritis, thyroid loss, pneumonitis and had to stop treatment. But it dealt with the cancer. 

I had 6x3 weekly sessions of EC when I first had breast cancer 9 years ago.  I was tired for a day ir two after each session but apart from that I was fine.  No other side effects!  xx

This isn't  meant  to sound harsh, you are not in control of what's  happened to you, you are in control of how you deal with it, you have no choice but to go with it, there's  no alternative  , deal with it.it doesn't  help people offering pity.