Diagnosed with triple negative breast cancer in November. So far I have had 4 of my PC treatments and 2 immunotherapy (I had reactions to both paclataxil and pembro) and I am struggling with anxiety.
I can’t stop crying and can’t see an end to all this. I have another 8 of these treatments then 4 EC cycles before surgery and then more radiotherapy/chemo/immunotherapy.
Ive heard EC is worse than PC and I’m struggling with this. I don’t know if I can cope! Even the 6 months to surgery seems a million miles away.
I have a fiance and good support network but I feel so lonely like nobody understands what I’m going through and I’m just sitting each day willing the day away.
I spoke to MacMillan but didn’t feel like I got a lot from it. They told me what I’m feeling is normal and not to be so hard on myself etc but I know all this but don’t know how to deal with my emotions and get through it. I am usually a strong person and don’t know what’s happened to me, all I do is mope and cry
How do I get through this?!
What are the stronger ones you ard on?
I was on metaclopramide for the first 4 days post EC (I was told I could take 4 rather than 3 a day when they weren't effective), then I moved to cyclizine on the 5th day, which I stopped needing on day 11. The nausea hasn't gone completely but, whilst it feels counterintuitive, nibbling on trusty crystallised ginger and plain crackers/biscuits as soon as I wake up and as needed during the day has really helped.
I have my 2nd EC next week and they have talked about another anti-sickness I can try (sorry, sure of the name of that) x
How long did the tiredness last? Did you have a period of feeling relatively well in between infusions? I’ve just been stuck in since Wednesday and it’s driving me mad but don’t feel up to anything other than a short walk!
Mother in law invited us for tea but not sure as there will be 4 people there though they are all currently well. Weighing up the pros and cons of infection risks vs emotional wellbeing! X
Glad you are starting to feel better.
did you have EC? how were you on that?
I found paclitaxel ok but struggling with EC and only had it on Wednesday- very fatigued/tired/weak and wobbly and light headed and also nauseous despite strongest anti sickness meds. Not sure if due to bad taste in my mouth though . It’s horrid and am hoping it won’t last the full 3 weeks! Need a break! X
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