On the subject of contact with my oncologist. I have a phone consult with her every three weeks before I get my herceptin and pertuzumab. I have had face to face or these throughout the time I was having chemo. She stepped back when I was having RT and surgery and then back in again when I went back on H&P. I had 6 cycles of chemo and I am on number 12 of the H&P. I have seen her or had a phone consult the day before every one of these.
Hi Wallydug, thanks for information. I'm told that at Velindre all sessions apart from the first one is nurse led . I'm not knocking Velindre they are a World renounced cancer center. It's just I want to see my oncologist! So I have had to insist! Lol I find it strange that cancer care is different in different areas of the UK.
Harley, I am sorry that you're having such a tough time right now. Firstly you must think this is a temporary phase. Secondly my onco says that spread doesn't happen overnight it takes a long while over time. I know it's so challenging and our minds are so powerful. Raise your concerns to your doctors and if you feel op is what you want then do push for it, even though you are healing right now. Partly the panic comes from when we don't know if anything can be done to make things better for us. I did adjuvant for the very same reason as I would have had a mental breakdown otherwise. I have such a panic past week and thank goodness now things are a bit more settled (hopefully!)
Bloatedness is no fun. I feel so too but need to keep up with fluids. Thinking of u and praying you get some resolve soon.
It baffles me still about aftercare. That doesn't give comfort to anyone having this constant worry!
I have had almost all common side effects, it hit me like a train from day 3 onwards, one after another. I have never had to rely on so many meds and that sent me on a panic attack / hyperventilating. My scalp still hurts so badly but painkillers help. Trying to keep my chin up but it's been hard. Cried so much and don't feel myself at all. I am sorry I am a walking misery. I hope I can smile again soon, u know how I love to joke about.
Keep telling myself tomorrow will be better. Am trying not to be nervous about port insertion on 24th, sigh. I wish they'd done this way before I started chemo.
Let us know how it goes with onco. I got a call with mine Thurs, I insisted lol
Thanks Jayne none of this is easy for any of us we have all had our own challenges . I will discuss all of this on Thursday. how you doing it must be hard having completed treatment . It has filled your life for so long and now you have to find a new normal . Hope you are ok xxxx
Hi Claud so sorry to hear you still have side effects . You are right about all the medication it's never ending . I'm starting bone strengthening infusions in Thursday and that's me done then until June . Unless I get lots of side effects from the infusion. Do hope you feel better soon . Why you having a port?
Hi Harleybear I'm ok started exercise classes today. Got an infusion on Thursday and then another one in June . Thinking about going back to work soon before my pay stops. Look after your self . I do very much hope you get your surgery soon x
Hi Claud , I have been trying really hard to distract my head today . I know I am my own worst enemy , I just crave one tiny bit of good news to come my way . Since December it has all been so difficult with the pancreatitis etc. The reasons for neoadjuvant.chemo seems very valid for TNBC . I will go through all of this on Thursday. I am also going to call in the the Macmillan centre to just have a chat I need to talk to someone now . Xxx
Good I am glad you started something new . I am still holding a date for us to all meet when we are all through this . May not be as early as spring but we will get there xxx
Hi everyone I have just seen my consultant and I did have a skin toxicity reaction to the docetaxol he is resting me this week and then next Friday I will start the p treatment with my herceptin next Friday. So every week for the next 6 weeks then I am finished. How is everyone pls, love and best wishes xx
