I’m newly diagnosed with breast cancer and waiting for a mastectomy in a few weeks (first time I’ve shared this and even writing it is scary). I only have a small lump and lumpectomy would have been possible except that my EEC Syndrome makes it impossible for me to have radiation therapy without the risk that treatment would cause more tumours. It’s to do with gene p63 abnormality. So, I can’t help feeling that I’m taking a sledgehammer to crack a nut but I know that I have no choice. Every one of my close female relatives has had breast cancer (not BRACA related) - all 6 of them. I’m 68 and an only child as my parents chose not to have kids in case they also had EEC. I’m infertile also due to the syndrome. Im hoping that the mastectomy will be accompanied by DIEP but there is some doubt as to wehether I have sufficient tummy fat. I’m also going to be taking Letrozole although that also conflicts with some of my EEC symptoms.
Hi and a very warm welcome to the online community
I'm not a member of this group but noticed that your post hadn't had any replies yet. This is a very active group so it doesn't take long for a post to slip off the first page of discussions. By replying to you it will 'bump' it back to the top of the discussions list.
Wishing you all the best with your upcoming surgery.
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
