Hello to all
I have received my news a few days ago - I have just been diagnosed with DCIS grade 2 ER positive breast cancer. I also had the DNA test and genetically I am in the higher risk group. I am meeting with my surgeon on Christmas eve to discuss my treatment plan. My gynaecologist indicated that with the DNA results it may well be a mastectomy rather than lumpectomy.
The waiting for that meeting is excruciating, I am someone who can cope as long as I have a plan.
I never expected there to be pain from the carcinoma, at night it's like I can almost feel it growing.
I feel like I am supporting my whole family with the news, my mother and husband keep crying and I just want normality.
Sorry for that I just needed to voice it out.
With much affection and hugs for you all
xxx
Unfortunately, this is a club nobody wants to join. You need to try concentrate on yourself and, although the wait can feel interminable, it does come to an end and you know what the plans are for your treatment. Tell your mother and husband how you feel and, perhaps, they will keep their emotions in check whilst they are around you. They probably don't know what a burden their emotions are to you. The pain you feel from your lump may be that nerves were damaged when biopsies were taken. This is a great group for you to 'rant' as we have all been in your shoes at one time. I am just 12 days post mastectomy so am still recovering but I have learned an awful lot from this group.
Hi big hugs for you, you may have to explain to your husband and mum I need your strength and positivity I understand how you feel but now is time for fighting this F@@@ cancer.
im waiting my results and my mom has already gone on about herself how please god don’t take my child this is even before I’ve had any results.
hope you get all your answers next week keep positive xxx
Hi , I am sorry to see you here in the club no-one wants to jouin -but you have come to the right place. Rant away if it helps you feel better .We have all been where you are now , waiting for results and a plan of action. Your team will produce what they think will be the very best plan for you as an individual. The waiting really is the worst part and once the plan is in place you will feel better- honestly. You will find a strength you didn't know you had and remember that breast cancer is very treatable now! With regards to your husband and mother I would try and have an honest discussion with them and tell them how you are feeling just now.Possibly suggest that they ring the Macmillan helpline for more information /reassurance- my husband was more reassured as to the outcome when I gave him the booklets that I had been given.Having said that he was always very supportive of me and yes there were a few tears along the way. Sending you big virtual hugs xx
Thank you so much, you are right , I am strong and I will fight this. My Mum has said the same thing! Good luck with your results. xx
Hi Topsey
Sorry you are feeling so anxious about your diagnosis, but you aren't alone it is a very normal feeling, as is being anxious about your family. I was interested in your DNA test and you being in a higher risk group? Is this higher risk for BC or something else as you mentioned a gynaecologist?
Thanks
Jo
Hi Jo
Thank you for your message. I live in France and was offered to join a group by my gynaecologist as part of a BC prevention study where they did the DNA test to see if I have the gene which makes me a higher risk. The results took 4 months to come through in the meantime I found a lump and didn't get the results until my biopsy. I hope that answers your question. I have been told that it will impact on my treatment plan.
Take care
xx
Hi
Sorry that make sense now! There is a Braca Positive group on Macmillan that you might find useful to join too? It is a really difficult time between diagnosis and treatment starting, and I found telling my family and friends one of the hardest things to deal with, but you have to keep sight that you are the one with the diagnosis and try and make sure you keep mentally well too x
Good luck with the appointment next week
Jo x
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