Hi joined a couple of days ago but wasn’t sure what to do. Was diagnosed 2 weeks ago with invasive lobular cancer. Due for a mastectomy next week, then chemo things seem to be happening at a scarily fast pace, not sure what to feel at the moment, fluctuating between all known emotions. I live alone and stopped work last week to self isolate that’s not doing a lot to cheer me up. Worst seems to be the waking up in the middle of the night when it all just seems to hit you again
Hi Lara17, I was diagnosed with triple negative breast cancer at the start of October and started chemotherapy within 3 weeks. I found in the first few weeks I had lots of very different emotions and couldn't sleep. As you say it all hits in the middle of the night. Since I've started my treatment, I have found that things are a bit more settled. I still have days with a big range of emotions and lots of tears, but I am generally sleeping better apart from when the chemo side effects kick in the day after treatment. Allow yourself to feel what you need to at the moment, I think it is part of processing what has happened. Take care
Hi , was just heading to bed when I saw your post. So wanted to say Welcome to the group! I know it’s not a group you would of chosen to join BUT you will find a mountain of support and advice on here!
I had a lumpectomy so can’t tell you much about the mastectomy side of things, however I can say that although everything seems very raw and scary now. Slowly, slowly step by step you will start to calm down and take things one step at a time!
So surgery is next week! Until then concentrate on trying to keep busy! If you enjoy cooking try making up some meals that you can freeze so you have something easy to heat up after your surgery! Do any Christmas wrapping you have to do or writing cards! I know Christmas is Probably the last thing on your mind, but it’s all about thinking about other things!
As for the middle of the night, try joining us on the AWAKE thread! It’s a thread that started when I couldn’t sleep! There’s usually someone on there to chat too and if not there are over 29,000 posts with some really funny pics! It’s a place that we share our fears and concerns but more importantly we laugh, we make light of some of the most difficult situations, because sometimes Laughter really is the best medicine!
You’ve got a long journey ahead my lovely, BUT you will get through it. Just give yourself time to get your head round the diagnosis and then concentrate on taking your mind off things for a few days! Worrying is natural, but it doesn’t help and it won’t change anything! You WILL get through this Hun, really you will.
I hope you can manage to sleep tonight and if not maybe I’ll see you in the AWAKE thread! I am hoping I’ll fall straight to sleep, but that would be a miracle!
Sending you a Welcome.....
Take Care Hun. Sal xxx
Thanks maybe I just needed the rabbit, made me smile. Sleep well x
Well if that made you smile Just wait till you hear about our little buddy Lucky Pants or as he’s better known LP.....
Complete with PPE for when he goes along to appointments with people! Bet that made you smile! Go on just a little bit!
Goodnight Hun, sleep well xx
Hi,
I hope you managed to sleep. It is a very difficult time but hop you’ll feel much better once things start progressing. Now is the time to be kind to yourself and do things that make you happy, not as easy when isolating but perhaps you enjoy cooking, gardening or can take the opportunity to watch the films you haven’t yet got around to. I had a mastectomy with reconstruction 2 months ago. I’m getting better, yes I get frustrated and upset at times but I’m looking ahead to returning to my usual routine soon.
Have a good day and if you need to talk you know where we are..
Take care x
Good to know others experiences, think one of the worst things is not knowing what’ to expect, been told I can’t have reconstruction due to prob needing radio therapy. Defo not a Katie price look alike in fact totally the opposite but got quite used to having 2 of them x
Hi Lara, so sorry you are going through this. I had my MX on the 12th Nov so justa few weeks ahead of you, mines ILC as well. The op was fine and no pain afterwards. The drian is a bit of a nuicance , pretty much all healed apart from a reaction to the glue or dressing so I have a rash. Night time and early morings are hard, I try listening to music and counting backwards as it keeps my mind away from other things. I think once you start getting treatment it gets easier. My emotions are all over the place as well . Let me know when your op is and how it all goes. Sending great big hugs. Anna
We are stronger than we think and braver than we know.
Thanks for that Anna, op is on the 10th, good to know you didn’t experience too many problems. Hopefully I won’t either! Just so much to process at the moment wish I could just skip forward a bit sat waiting for it all to start is driving me mad x take care Kathryn
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007