Diagnosis

FormerMember
FormerMember
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I was diagnosed with triple negative breast cancer on Wednesday. The mri suggests it has spread to the right breast and lymph nodes but they need to biopsy to confirm. I am terrified and can’t sleep. I have three young children. I am so scared and confused. 

  • Hello and welcome but sorry you find yourself here.  There are lots of ladies who have had TNBC and hopefully some will come along soon to offer you more support.

    I know this is a scary time but once you have your treatment plan you will feel better.  BC is very, very treatable.  When a poster responds or you see a post of interest to you if you click on the person's name it will take you to their profile and they will have hopefully filled out how they found themselves on this site!

    If you can't sleep there is an active Awake thread.  It's 3 years old and full of chatter where we share our worries, celebrations, funnies stories or just whinge about life.  Just click reply on the latest post and introduce yourself.  To jump to latest post use arrows in yellow at the bottom of page - see picture.

  • FormerMember
    FormerMember

    I’m sorry you find yourself here.  I have TNBC diagnosed in June this year.  I promise you that how you are feeling now is the worst, once a plan is in place you will feel much easier about it all, it’s surprising how strong we can be. 
    So next step biopsy, I was worried about this but the reality is that once the local is in you don’t feel a thing, I would say it was less painful than a blood test..  Once the tests are done you should have your results within 7-10 days and a plan for treatment very soon after.   
    For now try to be kind to yourself. I know my head was a mess at this point, I wanted to tell my daughters but couldn’t bring myself to until I knew for sure, then I felt guilty for causing them upset and worry, a real mess of emotions.  Hang in there and be kind to yourself you will get through this!  
    Sending you love xx

  • Hello,

    It will be five years on October 1st that I found myself in your position. A routine mammogram found three small tumours which were analysed as Triple Negative. I can understand how worried you feel especially as you are obviously much younger. The important thing to remember is that your cancer has been found. It can now be treated and although you will have heard sad stories on the media, there are nowadays many thousands of successful recoveries. I had no idea I had cancer so I always say I was so lucky the mammogram found it and it was treated. I was so sure I was fine I had put off the mammogram for some months as I was busy. It is the same for you now. Imagine the damage that could have occurred if the cancer wasn't found? I'm not saying ' don't  worry' because of course you will. We all do....even now........but at least you know your worries are beginning to be dealt with.

    Now, as     has said things will get easier as you get a treatment plan and can take control again of what is happening. It is difficult to explain to family. In my case it was elderly parents who had no understanding that a cancer diagnosis was no longer a death sentence. My children were older and once everything was confirmed, an amazing help to my husband.

    I wish you well with your treatment. It may not always be pleasant but it does pass and hopefully it will soon be you explaining to a newly diagnosed person that TNBC can be treated and five years is considered to be a landmark as few tnbc cancers return after that time. 

    Take care. Stay safe. Keep posting. We will help with information if we can but will be here if you just need a ' virtual' ear to listen.

    Love  Karen

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  • FormerMember
    FormerMember

    I was first diagnosed at 29 with triple negative BC, I had no choice but to have a mastectomy and lymph node sampling, 8 were removed 3 were positive, chemo and radio followed.

    Fast forward 14 years and have been diagnosed again on the other side with triple negative with at least 1 positive node. I had a mastectomy and full node clearance on Wednesday. The waiting up until that point was awful. I now feel positive as I'm in the cycle of treatment. I know chemo and radio are coming too.

    I do have an eight year old daughter and that has been more difficult for me this time round. I think whilst it is difficult with children (and I know I only have 1 so appreciate it will be more difficult for you), she is helping me mentally as I have even more to fight for this time. I came home on Thursday and whilst I felt I could go for a nap, I didn't as daughter came home from school and was so excited to see me.

    I always say it feels like a roller-coaster physically and mentally. The waiting is the pain in the bum bit, but as you get a plan you can start to prepare.

    Here anytime, try to be kind to yourself as it is a long journey,  forum's got me through last time xxxx

  • Just to say   I hope all goes well for you again over the next few months of treatment. At least the mastectomy last week should have removed the cancer. Now keeping it away again......typical it found your other breast....I expect you will have to have chemo and radiotherapy as further prevention. I hope you have some help for your little girl so you get some rest.

    Now, I hope you have managed to get back to sleep and don't find this reoly for hours.

    Take care. Stay safe

    Love Karen

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