Recent DCIS in situ diagnosis

FormerMember
FormerMember
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Hi I had a lumpectomy and sentinel node removal on 6th October and tomorrow I finish my course of radiotherapy. I know I’m really lucky as both my stepdaughter and her my both had mascectomy and chemo when they were diagnosed with their breast cancers. I don’t talk about my situation to family and friends as i feel I have nothing to feel bad about so I tell everyone I’m fine if they ask. But I’m not fine. There is the fear what if it comes back? Why wasn’t it found 18 months earlier when I told my doctor I had a bloody discharge coming from my nipple. Hospital did a mammogram and said they couldn’t see anything and it was probably a detached duct nothing to worry about. Fortunately I moved and I was seen and diagnosed within days. I just feel so scared and angry.

  • Hi ,

    of course you’re not fine, you’ve had surgery and treatment, radiotherapy is tiring, it’s been a major shock to your whole system! Yes not losing your breast was lucky but it was still cancer, it was just contained. 
    please accept a big hug from me and acknowledge that you’ve faced a life limiting diagnosis with outer courage even if inside you quaked! And a gold star too, for persisting! 
    hugs xxx

    Moomy

  • FormerMember
    FormerMember

    So sorry you have gone through this. And well done for getting seen and heard. I had DCIS 11 years ago and decided on a masectomy as the lump was large. I now have ILC and second masectomy. I am not sure how old you are, I was 42 and am now 53. I dont want to scare you but to warn you. I was having yearly mammograms and they did not show the ILC. Its common in women in their 50's. I was never imformed that its hard to detect on mammo's. If I had known would have opted for a double many years ago. I relyed on getting that all clear letter every year. Ask questions and get the info , forwarned is for armed. I am telling my friends and family as I dont want other people going through this. Take care.