I have been having chemo (3 weeks on then a rest week) for 14 months and other than a small increase in my tumour which 5 sessions of radiotherapy stopped my condition has remained stable.
For several weeks now my right foot has been swollen and my toes have had pins and needles. My chemo nurse spoke to my oncologist who said that because my foot is normal when I wake up after a nights sleep it shouldn’t be a problem.
i know that I shouldn’t Google but I did and it said it could be something called chemo foot which worries me because I’m scared that they may stop my chemo. It also said that it could be caused by steroids. I have COPD which requires a steroid inhaler plus my chemo starts with steroids first.
Has anyone had a foot problem from either chem or steroids because I’m not sure what to think.
Hello Olliedog
I have foot problems from chemo. By coincidence I have just returned today from my annual electrical leg nerve tests because unfortunately the damage I had was permanent. The tests will show if the deterioration is creeping further up the leg. Today's results showed that whilst the foot and lower leg have problems, the nerves are still active behind the knee and above. I don't like the tests as they are painful but the next control won't be until next year and I do know now what is going on..
Both the neurologist....and the neuro surgeon who had to operate on the sciatic nerve previously.....say that chemo caused the damage. The report I brought home today even mentions it. Oncology are less keen to accept responsibility. My symptoms are the same as yours ...pins and needles,.numbness, cramps, burning soles of feet but constantly feeling cold to touch.
You asked what you should do now. If oncology won't help.....ask your GP for a B12 blood check. This is often an indicator of nerve damage. Ask to be referred to neurology for further help. I am prescribed gabapentine. The dose has had to increase over time as it loses it's effect so if you are given it, start low. It aids with nerve deterioration but is not , as some people think, a painkiller. For days when my feet hurt more, I can take a version of cocodamol....paracodeine... but I avoid this as much as possible.
I hope you get some support soon as you are obviously dealing with a number of other difficulties . There is help available but you might have to insist you are taken seriously. This is a recognised chemo side effects among other areas of medicine. Even physiotherapy told me they see many patients who need help after chemo.
Take care. Thinking of you. Karen
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