Ribociclib and sore eyes

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Is anyone on ribociclib and suffering with sore eyes.  My eyes are so painful and the eyelids too.  I feel like the tears are burning my eyelids and just around my eyes.  The optician said I have dry eyes and have been using hylo-forte but this doesn't seem to be working.

  • Hi, it might be worth having a chat with your BCN, just to let them know that you're struggling with this. Best wishes 

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  • Hi Leelaloo,

    Sorry you’re going through this too, but yes—I also have dry, sore eyes on Ribo.  They’re strangely also very watery when I’m outside Disappointed

    My oncologist lowered my dose to 400 mg, which has helped slightly. I’ve also been using Hycosan, which gives relief for a few minutes.

    I’m probably being a bit wishful, but I’m hoping it’s a side effect that will go away on its own, as some of the others have (I’m 9 months in!).

    I hope things improve for you soon.

  • Hi Smudge1 this is exactly the same as me.  Outside my eyes are constantly watering like I am crying.  My ribo has been reduced to 400mg but it hasnt helped. I have been on this for about 15 months.  I sincerely hope this improves because I cant carry on like this.

    Lee x